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Source1

{
  "resourceType": "QuestionnaireResponse",
  "id": "PatientWhanauGoalsPreferencesQuestionnaireResponse",
  "meta": {
    "versionId": "2",
    "lastUpdated": "2024-08-07T08:31:00Z",
    "profile": [
      "http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse"
    ],
    "tag": [
      {
        "system": "https://fhir-ig.digital.health.nz/rheumatic-fever/CodeSystem/nz-rheumaticfever-codesystem",
        "code": "rf-nz",
        "display": "rheumatic fever"
      }
    ]
  },
  "basedOn": [
    {
      "reference": "CarePlan/RegisteredPatient"
    }
  ],
  "questionnaire": "https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0",
  "status": "completed",
  "subject": {
    "type": "Patient",
    "identifier": {
      "use": "official",
      "system": "https://standards.digital.health.nz/ns/nhi-id",
      "value": "ZKC7284"
    },
    "display": "Sage Westbrook"
  },
  "authored": "2023-06-19T03:08:00.504Z",
  "author": {
    "type": "Organization",
    "identifier": {
      "use": "official",
      "system": "https://standards.digital.health.nz/ns/hpi-organisation-id",
      "value": "G0M086-B"
    },
    "display": "Te Tai Tokerau Rheumatic Fever Secondary Prevention Service"
  },
  "item": [
    {
      "linkId": "ImportantToMe",
      "text": "What things that are important to me and my family that support my health and wellbeing? (enter text)",
      "answer": [
        {
          "valueString": "I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire."
        }
      ]
    },
    {
      "linkId": "WhanauInvolvement",
      "text": "How would I like my whanau and support persons to be involved? (enter text)",
      "answer": [
        {
          "valueString": "I want my sisters to be with me at the injection appointments to support and distract me."
        }
      ]
    },
    {
      "linkId": "BestWayToCommunicate",
      "text": "The best way to communicate with me is…? (choose one)",
      "answer": [
        {
          "valueString": "text message"
        }
      ]
    },
    {
      "linkId": "AppointmentsContact",
      "text": "I know who to contact about my appointments? (choose one)",
      "answer": [
        {
          "valueBoolean": true
        }
      ]
    },
    {
      "linkId": "PreferredAppointmentsLocation",
      "text": "What location do I prefer to receive injected antibiotics at? (choose one)",
      "answer": [
        {
          "valueString": "Home"
        }
      ]
    },
    {
      "linkId": "InjectionLocationDetail",
      "text": "More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)",
      "answer": [
        {
          "valueString": "We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that!"
        }
      ]
    },
    {
      "linkId": "ImportantDuringInjectionVisits",
      "text": "What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)",
      "answer": [
        {
          "valueString": "I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections"
        }
      ]
    },
    {
      "linkId": "InjectionVisitsNoNos",
      "text": "What things don't work well for me during my injection visits? (enter text)",
      "answer": [
        {
          "valueString": "I prefer not to know anything about the dose of medication in my injections.\nAlso I don't like having the injection in the same part of my thigh on each appointment.  It would be good if the nurse can mix it up a bit."
        }
      ]
    },
    {
      "linkId": "MakingInjectionsComfortable",
      "text": "What things do I like to have with my injections to make them more comfortable? (multiple choice)",
      "answer": [
        {
          "valueString": "Lignocaine"
        },
        {
          "valueString": "Ice pack"
        },
        {
          "valueString": "Numbing spray"
        },
        {
          "valueString": "Distraction"
        }
      ]
    },
    {
      "linkId": "InjectionOtherComfort",
      "text": "What other things make my injections more comfortable? (enter text)",
      "answer": [
        {
          "valueString": "Ice cream always works well!"
        }
      ]
    },
    {
      "linkId": "MedsPreferredSupplyMethod",
      "text": "I would prefer to get my oral antibiotic medicines from? (choose one)",
      "answer": [
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "MedsSupplyOtherDetail",
      "text": "If other, enter details",
      "answer": [
        {
          "valueString": "Please can you supply my medications in two-month packs?"
        }
      ]
    },
    {
      "linkId": "EasierToGetToAppointments",
      "text": "What things make it easier for me to get to hospital appointments? (multiple choice)",
      "answer": [
        {
          "valueString": "Morning appointments"
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsImportant",
      "text": "More detail about the things that are important to me about hospital appointments (enter text)",
      "answer": [
        {
          "valueString": "I would like my hospital injections in a room with a view of the mountains."
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsNoNos",
      "text": "Things that don't work well for me about hospital appointments (enter text)",
      "answer": [
        {
          "valueString": "I prefer it if there are not heaps of trainee medics watching me get my injections."
        }
      ]
    },
    {
      "linkId": "SupportGettingToHospitalAppointments",
      "text": "Do I need support getting to and from hospital appointment? (choose one)",
      "answer": [
        {
          "valueString": "No"
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsTransportSupport",
      "text": "Which transport support option do I need? (choose one)",
      "answer": [
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsTransportOtherDetail",
      "text": "What other details are there about getting to hospital appointments? (enter text)",
      "answer": [
        {
          "valueString": "Please can I have a reserved park space to park Dad's '73 Hilux?  This will help me get to my appointments on time."
        }
      ]
    }
  ]
}