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Packagetewhatuora.rheumaticfever
Resource TypeQuestionnaire
IdQuestionnaire-PatientWhanauGoalsPreferencesQuestionnaire.json
FHIR VersionR4
Sourcehttps://build.fhir.org/ig/tewhatuora/fhir-rheumatic-fever/Questionnaire-PatientWhanauGoalsPreferencesQuestionnaire.html
URLhttps://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire
Version1.0.0
Statusdraft
Date2023-10-16
NamePatientWhanauGoalsPreferencesQuestionnaire
TitlePatient & whanau goals and preferences questionnaire
Authoritynational
DescriptionGathers patient and whanau preferences and goals for rheumatic fever care
PurposeGathers patient and whanau preferences and goals for rheumatic fever care

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Source1

{
  "resourceType": "Questionnaire",
  "id": "PatientWhanauGoalsPreferencesQuestionnaire",
  "url": "https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire",
  "identifier": [
    {
      "use": "official",
      "value": "PatientWhanauGoalsPreferencesQuestionnaire",
      "period": {
        "start": "2023-10-16"
      }
    }
  ],
  "version": "1.0.0",
  "name": "PatientWhanauGoalsPreferencesQuestionnaire",
  "title": "Patient & whanau goals and preferences questionnaire",
  "status": "draft",
  "experimental": false,
  "subjectType": [
    "Patient"
  ],
  "date": "2023-10-16",
  "publisher": "Te Whatu Ora",
  "contact": [
    {
      "name": "Te Whatu Ora",
      "telecom": [
        {
          "system": "url",
          "value": "https://www.tewhatuora.govt.nz/"
        },
        {
          "system": "email",
          "value": "integration@tewhatuora.govt.nz"
        }
      ]
    },
    {
      "name": "HNZ Integration Team",
      "telecom": [
        {
          "system": "email",
          "value": "integration@tewhatuora.govt.nz",
          "use": "work"
        }
      ]
    }
  ],
  "description": "Gathers patient and whanau preferences and goals for rheumatic fever care",
  "purpose": "Gathers patient and whanau preferences and goals for rheumatic fever care",
  "item": [
    {
      "linkId": "page1",
      "prefix": "page1",
      "text": "Please complete this questionnaire to record goals and preferences of a patient or their whanau in relation to rheumatic fever prevention treatment.",
      "type": "display"
    },
    {
      "linkId": "ImportantToMe",
      "prefix": "1)",
      "text": "What things that are important to me and my family that support my health and wellbeing? (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "WhanauInvolvement",
      "prefix": "2)",
      "text": "How would I like my whanau and support persons to be involved? (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "BestWayToCommunicate",
      "prefix": "3)",
      "text": "The best way to communicate with me is…? (choose one)",
      "type": "choice",
      "required": true,
      "repeats": false,
      "answerOption": [
        {
          "valueString": "phone call"
        },
        {
          "valueString": "text message"
        },
        {
          "valueString": "email"
        }
      ]
    },
    {
      "linkId": "AppointmentsContact",
      "prefix": "4)",
      "text": "I know who to contact about my appointments? (choose one)",
      "type": "boolean",
      "required": false,
      "item": [
        {
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
              "valueCodeableConcept": {
                "coding": [
                  {
                    "system": "http://hl7.org/fhir/questionnaire-item-control",
                    "code": "help",
                    "display": "Help-Button"
                  }
                ],
                "text": "Help-Button"
              }
            }
          ],
          "linkId": "AppointmentsContactHelp",
          "text": "I understand who I should phone or text if I need to change my appointments, OR if I am going to be away, OR if I have questions.",
          "type": "display"
        }
      ]
    },
    {
      "linkId": "PreferredAppointmentsLocation",
      "prefix": "5)",
      "text": "What location do I prefer to receive injected antibiotics at? (choose one)",
      "type": "choice",
      "required": true,
      "repeats": false,
      "answerOption": [
        {
          "valueString": "School"
        },
        {
          "valueString": "Home"
        },
        {
          "valueString": "Work"
        },
        {
          "valueString": "Clinic"
        },
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "InjectionLocationDetail",
      "prefix": "6)",
      "text": "More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "ImportantDuringInjectionVisits",
      "prefix": "7)",
      "text": "What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "InjectionVisitsNoNos",
      "prefix": "8)",
      "text": "What things don't work well for me during my injection visits? (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "MakingInjectionsComfortable",
      "prefix": "9)",
      "text": "What things do I like to have with my injections to make them more comfortable? (multiple choice)",
      "type": "choice",
      "required": true,
      "repeats": true,
      "answerOption": [
        {
          "valueString": "Lignocaine"
        },
        {
          "valueString": "Ice pack"
        },
        {
          "valueString": "Buzzy bee"
        },
        {
          "valueString": "Numbing cream (Emla)"
        },
        {
          "valueString": "Numbing spray"
        },
        {
          "valueString": "Distraction"
        },
        {
          "valueString": "Very slow injection"
        }
      ]
    },
    {
      "linkId": "InjectionOtherComfort",
      "prefix": "10)",
      "text": "What other things make my injections more comfortable? (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "MedsPreferredSupplyMethod",
      "prefix": "11)",
      "text": "I would prefer to get my oral antibiotic medicines from? (choose one)",
      "type": "choice",
      "required": true,
      "repeats": false,
      "answerOption": [
        {
          "valueString": "GP prescription"
        },
        {
          "valueString": "Monthly visit from a nurse"
        },
        {
          "valueString": "3 monthly visit from a nurse"
        },
        {
          "valueString": "Pick-up from a pharmacy"
        },
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "MedsSupplyOtherDetail",
      "prefix": "11.1)",
      "text": "If other, enter details",
      "type": "text",
      "enableWhen": [
        {
          "question": "MedsPreferredSupplyMethod",
          "operator": "=",
          "answerString": "Other"
        }
      ],
      "required": true
    },
    {
      "linkId": "EasierToGetToAppointments",
      "prefix": "12)",
      "text": "What things make it easier for me to get to hospital appointments? (multiple choice)",
      "type": "choice",
      "required": true,
      "repeats": true,
      "answerOption": [
        {
          "valueString": "Support with transport"
        },
        {
          "valueString": "Morning appointments"
        },
        {
          "valueString": "Afternoon appointments"
        },
        {
          "valueString": "Choice of clinic days"
        },
        {
          "valueString": "Cultural support"
        },
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsImportant",
      "prefix": "13)",
      "text": "More detail about the things that are important to me about hospital appointments (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "HospitalAppointmentsNoNos",
      "prefix": "14)",
      "text": "Things that don't work well for me about hospital appointments (enter text)",
      "type": "text",
      "required": true
    },
    {
      "linkId": "SupportGettingToHospitalAppointments",
      "prefix": "15)",
      "text": "Do I need support getting to and from hospital appointment? (choose one)",
      "type": "choice",
      "required": true,
      "repeats": false,
      "answerOption": [
        {
          "valueString": "Yes - always"
        },
        {
          "valueString": "Yes - sometimes, please check each time"
        },
        {
          "valueString": "No"
        },
        {
          "valueString": "Not sure"
        },
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsTransportSupport",
      "prefix": "question 16",
      "text": "Which transport support option do I need? (choose one)",
      "type": "choice",
      "required": true,
      "repeats": false,
      "answerOption": [
        {
          "valueString": "Taxi vouchers"
        },
        {
          "valueString": "Top up on public transport card"
        },
        {
          "valueString": "Hospital to provide transport"
        },
        {
          "valueString": "Other"
        }
      ]
    },
    {
      "linkId": "HospitalAppointmentsTransportOtherDetail",
      "prefix": "question 17",
      "text": "What other details are there about getting to hospital appointments? (enter text)",
      "type": "text",
      "required": true
    }
  ]
}