FHIR IG analytics| Package | hl7.fhir.us.uscdi-scd |
| Resource Type | StructureDefinition |
| Id | StructureDefinition-scd-voc-frequency.json |
| FHIR Version | R4 |
| Source | https://build.fhir.org/ig/hlnconsulting/uscdi-scd-ig/StructureDefinition-scd-voc-frequency.html |
| URL | http://hl7.org/fhir/us/uscdi-scd/StructureDefinition/scd-voc-frequency |
| Version | 0.1.0 |
| Status | active |
| Date | 2026-09-11T00:10:30+00:00 |
| Name | SCDVOCFrequencyExtension |
| Title | SCD Vaso-Occlusive Crisis Frequency |
| Realm | us |
| Authority | hl7 |
| Description | Documents the reported or documented frequency of vaso-occlusive crisis (VOC) episodes for a patient with Sickle Cell Disease over a defined observation period. This is a key clinical parameter used to assess disease severity and guide therapy escalation. Clinical context: - ≥2 VOC episodes/year: threshold for considering hydroxyurea initiation - ≥2 VOC episodes/year on hydroxyurea: threshold for considering crizanlizumab - Frequent hospitalizations for VOC: consideration for HSCT evaluation This extension is intended for use on the Condition resource representing the patient's primary SCD diagnosis (problem list entry). |
| Type | Extension |
| Kind | complex-type |
No resources found
No resources found
No extension usage examples found
Note: links and images are rebased to the (stated) source
Generated Narrative: StructureDefinition scd-voc-frequency
| Name | Flags | Card. | Type | Description & Constraints |
|---|---|---|---|---|
  Extension | 0..* | Extension | Extension | |
  extension | 2..* | Extension | Extension | |
 Slices for extension | Content/Rules for all slices | |||
   extension:episodeCount | S | 1..1 | Extension | Number of VOC episodes in the observation period |
  extension | 0..0 | Extension | ||
| url | 1..1 | uri | "episodeCount" | |
  value[x] | 0..1 | integer | Value of extension | |
| extension:observationPeriod | S | 1..1 | Extension | Period over which VOC episodes were counted |
| extension | 0..0 | Extension | ||
| url | 1..1 | uri | "observationPeriod" | |
 value[x] | 0..1 | Period | Value of extension | |
 extension:measurementMethod | S | 0..1 | Extension | How episodes were counted (self-report, chart review, hospitalization records) |
 extension | 0..0 | Extension | ||
| url | 1..1 | uri | "measurementMethod" | |
| value[x] | 0..1 | CodeableConcept | Value of extension | |
| url | 1..1 | uri | "http://hl7.org/fhir/us/uscdi-scd/StructureDefinition/scd-voc-frequency" | |
 value[x] | 0..0 | Value of extension | ||
| Documentation for this format | ||||
FHIR
FHIRsmith{
"resourceType": "StructureDefinition",
"id": "scd-voc-frequency",
"text": {
"status": "extensions",
"div": "<!-- snip (see above) -->"
},
"url": "http://hl7.org/fhir/us/uscdi-scd/StructureDefinition/scd-voc-frequency",
"version": "0.1.0",
"name": "SCDVOCFrequencyExtension",
"title": "SCD Vaso-Occlusive Crisis Frequency",
"status": "active",
"experimental": false,
"date": "2026-09-11T00:10:30+00:00",
"publisher": "HL7 International / Public Health",
"contact": [
{
"name": "HL7 International / Public Health",
"telecom": [
{
"system": "url",
"value": "https://www.hl7.org/Special/committees/pher"
},
{
"system": "email",
"value": "pher@lists.HL7.org"
}
]
},
{
"name": "HL7 Public Health Work Group",
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{
"system": "url",
"value": "http://www.hl7.org/Special/committees/pher"
},
{
"system": "email",
"value": "pher@lists.HL7.org"
}
]
}
],
"description": "Documents the reported or documented frequency of vaso-occlusive crisis (VOC)\nepisodes for a patient with Sickle Cell Disease over a defined observation\nperiod. This is a key clinical parameter used to assess disease severity\nand guide therapy escalation.\n\nClinical context:\n- ≥2 VOC episodes/year: threshold for considering hydroxyurea initiation\n- ≥2 VOC episodes/year on hydroxyurea: threshold for considering crizanlizumab\n- Frequent hospitalizations for VOC: consideration for HSCT evaluation\n\nThis extension is intended for use on the Condition resource representing\nthe patient's primary SCD diagnosis (problem list entry).",
"jurisdiction": [
{
"coding": [
{
"system": "urn:iso:std:iso:3166",
"code": "US",
"display": "United States of America"
}
]
}
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{
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"expression": "Condition"
}
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{
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{
"key": "ele-1",
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},
{
"key": "ext-1",
"severity": "error",
"human": "Must have either extensions or value[x], not both",
"expression": "extension.exists() != value.exists()",
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],
"isModifier": false,
"isSummary": false
},
{
"id": "Extension.extension:episodeCount",
"path": "Extension.extension",
"sliceName": "episodeCount",
"short": "Number of VOC episodes in the observation period",
"definition": "An Extension",
"min": 1,
"max": "1",
"base": {
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"min": 0,
"max": "*"
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{
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],
"mustSupport": true,
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"isSummary": false
},
{
"id": "Extension.extension:episodeCount.id",
"path": "Extension.extension.id",
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"xmlAttr"
],
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"min": 0,
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"base": {
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"type": [
{
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{
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],
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],
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"mapping": [
{
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]
},
{
"id": "Extension.extension:episodeCount.extension",
"path": "Extension.extension.extension",
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{
"type": "value",
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],
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{
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{
"key": "ext-1",
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"expression": "extension.exists() != value.exists()",
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],
"isModifier": false,
"isSummary": false
},
{
"id": "Extension.extension:episodeCount.url",
"path": "Extension.extension.url",
"representation": [
"xmlAttr"
],
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"comment": "The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.",
"min": 1,
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"base": {
"path": "Extension.url",
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"max": "1"
},
"type": [
{
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{
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"valueUrl": "uri"
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],
"code": "http://hl7.org/fhirpath/System.String"
}
],
"fixedUri": "episodeCount",
"isModifier": false,
"isSummary": false,
"mapping": [
{
"identity": "rim",
"map": "N/A"
}
]
},
{
"id": "Extension.extension:episodeCount.value[x]",
"path": "Extension.extension.value[x]",
"short": "Value of extension",
"definition": "Value of extension - must be one of a constrained set of the data types (see [Extensibility](http://hl7.org/fhir/R4/extensibility.html) for a list).",
"min": 0,
"max": "1",
"base": {
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"min": 0,
"max": "1"
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"type": [
{
"code": "integer"
}
],
"constraint": [
{
"key": "ele-1",
"severity": "error",
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"expression": "hasValue() or (children().count() > id.count())",
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],
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"mapping": [
{
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]
},
{
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{
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"expression": "extension.exists() != value.exists()",
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}
],
"mustSupport": true,
"isModifier": false,
"isSummary": false
},
{
"id": "Extension.extension:observationPeriod.id",
"path": "Extension.extension.id",
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"xmlAttr"
],
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},
{
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{
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},
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],
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},
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{
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],
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},
{
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"code": "http://hl7.org/fhirpath/System.String"
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],
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"mapping": [
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},
{
"id": "Extension.extension:measurementMethod.extension",
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"description": "Extensions are always sliced by (at least) url",
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{
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{
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"xpath": "@value|f:*|h:div",
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},
{
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"expression": "extension.exists() != value.exists()",
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],
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{
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"comment": "The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.",
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"max": "1"
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"type": [
{
"extension": [
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"url": "http://hl7.org/fhir/StructureDefinition/structuredefinition-fhir-type",
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],
"code": "http://hl7.org/fhirpath/System.String"
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],
"fixedUri": "measurementMethod",
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"isSummary": false,
"mapping": [
{
"identity": "rim",
"map": "N/A"
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]
},
{
"id": "Extension.extension:measurementMethod.value[x]",
"path": "Extension.extension.value[x]",
"short": "Value of extension",
"definition": "Value of extension - must be one of a constrained set of the data types (see [Extensibility](http://hl7.org/fhir/R4/extensibility.html) for a list).",
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"max": "1",
"base": {
"path": "Extension.value[x]",
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"max": "1"
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"type": [
{
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{
"key": "ele-1",
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"xpath": "@value|f:*|h:div",
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],
"isModifier": false,
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"mapping": [
{
"identity": "rim",
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]
},
{
"id": "Extension.url",
"path": "Extension.url",
"representation": [
"xmlAttr"
],
"short": "identifies the meaning of the extension",
"definition": "Source of the definition for the extension code - a logical name or a URL.",
"comment": "The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.",
"min": 1,
"max": "1",
"base": {
"path": "Extension.url",
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"max": "1"
},
"type": [
{
"extension": [
{
"url": "http://hl7.org/fhir/StructureDefinition/structuredefinition-fhir-type",
"valueUrl": "uri"
}
],
"code": "http://hl7.org/fhirpath/System.String"
}
],
"fixedUri": "http://hl7.org/fhir/us/uscdi-scd/StructureDefinition/scd-voc-frequency",
"isModifier": false,
"isSummary": false,
"mapping": [
{
"identity": "rim",
"map": "N/A"
}
]
},
{
"id": "Extension.value[x]",
"path": "Extension.value[x]",
"short": "Value of extension",
"definition": "Value of extension - must be one of a constrained set of the data types (see [Extensibility](http://hl7.org/fhir/R4/extensibility.html) for a list).",
"min": 0,
"max": "0",
"base": {
"path": "Extension.value[x]",
"min": 0,
"max": "1"
},
"type": [
{
"code": "base64Binary"
},
{
"code": "boolean"
},
{
"code": "canonical"
},
{
"code": "code"
},
{
"code": "date"
},
{
"code": "dateTime"
},
{
"code": "decimal"
},
{
"code": "id"
},
{
"code": "instant"
},
{
"code": "integer"
},
{
"code": "markdown"
},
{
"code": "oid"
},
{
"code": "positiveInt"
},
{
"code": "string"
},
{
"code": "time"
},
{
"code": "unsignedInt"
},
{
"code": "uri"
},
{
"code": "url"
},
{
"code": "uuid"
},
{
"code": "Address"
},
{
"code": "Age"
},
{
"code": "Annotation"
},
{
"code": "Attachment"
},
{
"code": "CodeableConcept"
},
{
"code": "Coding"
},
{
"code": "ContactPoint"
},
{
"code": "Count"
},
{
"code": "Distance"
},
{
"code": "Duration"
},
{
"code": "HumanName"
},
{
"code": "Identifier"
},
{
"code": "Money"
},
{
"code": "Period"
},
{
"code": "Quantity"
},
{
"code": "Range"
},
{
"code": "Ratio"
},
{
"code": "Reference"
},
{
"code": "SampledData"
},
{
"code": "Signature"
},
{
"code": "Timing"
},
{
"code": "ContactDetail"
},
{
"code": "Contributor"
},
{
"code": "DataRequirement"
},
{
"code": "Expression"
},
{
"code": "ParameterDefinition"
},
{
"code": "RelatedArtifact"
},
{
"code": "TriggerDefinition"
},
{
"code": "UsageContext"
},
{
"code": "Dosage"
},
{
"code": "Meta"
}
],
"constraint": [
{
"key": "ele-1",
"severity": "error",
"human": "All FHIR elements must have a @value or children",
"expression": "hasValue() or (children().count() > id.count())",
"xpath": "@value|f:*|h:div",
"source": "http://hl7.org/fhir/StructureDefinition/Element"
}
],
"isModifier": false,
"isSummary": false,
"mapping": [
{
"identity": "rim",
"map": "N/A"
}
]
}
]
},
"differential": {
"element": [
{
"id": "Extension",
"path": "Extension"
},
{
"id": "Extension.extension",
"path": "Extension.extension",
"min": 2
},
{
"id": "Extension.extension:episodeCount",
"path": "Extension.extension",
"sliceName": "episodeCount",
"short": "Number of VOC episodes in the observation period",
"min": 1,
"max": "1",
"mustSupport": true
},
{
"id": "Extension.extension:episodeCount.extension",
"path": "Extension.extension.extension",
"max": "0"
},
{
"id": "Extension.extension:episodeCount.url",
"path": "Extension.extension.url",
"fixedUri": "episodeCount"
},
{
"id": "Extension.extension:episodeCount.value[x]",
"path": "Extension.extension.value[x]",
"type": [
{
"code": "integer"
}
]
},
{
"id": "Extension.extension:observationPeriod",
"path": "Extension.extension",
"sliceName": "observationPeriod",
"short": "Period over which VOC episodes were counted",
"min": 1,
"max": "1",
"mustSupport": true
},
{
"id": "Extension.extension:observationPeriod.extension",
"path": "Extension.extension.extension",
"max": "0"
},
{
"id": "Extension.extension:observationPeriod.url",
"path": "Extension.extension.url",
"fixedUri": "observationPeriod"
},
{
"id": "Extension.extension:observationPeriod.value[x]",
"path": "Extension.extension.value[x]",
"type": [
{
"code": "Period"
}
]
},
{
"id": "Extension.extension:measurementMethod",
"path": "Extension.extension",
"sliceName": "measurementMethod",
"short": "How episodes were counted (self-report, chart review, hospitalization records)",
"min": 0,
"max": "1",
"mustSupport": true
},
{
"id": "Extension.extension:measurementMethod.extension",
"path": "Extension.extension.extension",
"max": "0"
},
{
"id": "Extension.extension:measurementMethod.url",
"path": "Extension.extension.url",
"fixedUri": "measurementMethod"
},
{
"id": "Extension.extension:measurementMethod.value[x]",
"path": "Extension.extension.value[x]",
"type": [
{
"code": "CodeableConcept"
}
]
},
{
"id": "Extension.url",
"path": "Extension.url",
"fixedUri": "http://hl7.org/fhir/us/uscdi-scd/StructureDefinition/scd-voc-frequency"
},
{
"id": "Extension.value[x]",
"path": "Extension.value[x]",
"max": "0"
}
]
}
}