FHIRsmith: CodeSystem/CodeSystem-scd-observation-category-cs.json

FHIR IG analytics

Package	hl7.fhir.us.uscdi-scd
Resource Type	CodeSystem
Id	CodeSystem-scd-observation-category-cs.json
FHIR Version	R4
Source	https://build.fhir.org/ig/hlnconsulting/uscdi-scd-ig/CodeSystem-scd-observation-category-cs.html
URL	http://hl7.org/fhir/us/uscdi-scd/CodeSystem/scd-observation-category-cs
Version	0.1.0
Status	active
Date	2026-09-11T00:10:30+00:00
Name	SCDObservationCategoryCS
Title	SCD Observation Category Code System
Realm	us
Authority	hl7
Description	Local code system defining observation category codes specific to Sickle Cell Disease clinical data exchange. These categories supplement the standard HL7 observation-category codes (laboratory, vital-signs, etc.) with SCD-specific sub-categories. TODO: Review against LOINC Part codes and US Core observation categories before finalizing. Consider submitting concepts to HL7 THO or LOINC.
Content	complete

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Narrative

Note: links and images are rebased to the (stated) source

Generated Narrative: CodeSystem scd-observation-category-cs

This case-sensitive code system http://hl7.org/fhir/us/uscdi-scd/CodeSystem/scd-observation-category-cs defines the following codes:

Code	Display	Definition
hemoglobin-fractionation	Hemoglobin Fractionation	Observation category for hemoglobin fractionation or electrophoresis results, including HbS%, HbF%, HbA%, HbA2%, and HbC% as measured by HPLC or capillary electrophoresis.
iron-overload-assessment	Iron Overload Assessment	Observation category for measurements used to assess transfusional iron overload in SCD patients on chronic transfusion therapy, including serum ferritin, liver iron concentration (LIC), and transferrin saturation.
transfusion-medicine	Transfusion Medicine	Observation category for immunohematology and transfusion medicine results, including ABO/Rh typing, extended red cell antigen phenotyping, antibody identification, and crossmatch results.
scd-pain-assessment	SCD Pain Assessment	Observation category for pain severity assessments in the context of Sickle Cell Disease, including numeric rating scale (NRS) scores for vaso-occlusive crisis monitoring.
scd-disease-monitoring	SCD Disease Monitoring	Observation category for disease-specific monitoring observations in SCD that do not fit other standard categories, including functional asplenia markers, organ function screening, and complication surveillance.

Source1

{
  "resourceType": "CodeSystem",
  "id": "scd-observation-category-cs",
  "text": {
    "status": "generated",
    "div": "<!-- snip (see above) -->"
  },
  "url": "http://hl7.org/fhir/us/uscdi-scd/CodeSystem/scd-observation-category-cs",
  "version": "0.1.0",
  "name": "SCDObservationCategoryCS",
  "title": "SCD Observation Category Code System",
  "status": "active",
  "experimental": false,
  "date": "2026-09-11T00:10:30+00:00",
  "publisher": "HL7 International / Public Health",
  "contact": [
    {
      "name": "HL7 International / Public Health",
      "telecom": [
        {
          "system": "url",
          "value": "https://www.hl7.org/Special/committees/pher"
        },
        {
          "system": "email",
          "value": "pher@lists.HL7.org"
        }
      ]
    },
    {
      "name": "HL7 Public Health Work Group",
      "telecom": [
        {
          "system": "url",
          "value": "http://www.hl7.org/Special/committees/pher"
        },
        {
          "system": "email",
          "value": "pher@lists.HL7.org"
        }
      ]
    }
  ],
  "description": "Local code system defining observation category codes specific to Sickle\nCell Disease clinical data exchange. These categories supplement the\nstandard HL7 observation-category codes (laboratory, vital-signs, etc.)\nwith SCD-specific sub-categories.\n\nTODO: Review against LOINC Part codes and US Core observation categories\nbefore finalizing. Consider submitting concepts to HL7 THO or LOINC.",
  "jurisdiction": [
    {
      "coding": [
        {
          "system": "urn:iso:std:iso:3166",
          "code": "US",
          "display": "United States of America"
        }
      ]
    }
  ],
  "caseSensitive": true,
  "content": "complete",
  "count": 5,
  "concept": [
    {
      "code": "hemoglobin-fractionation",
      "display": "Hemoglobin Fractionation",
      "definition": "Observation category for hemoglobin fractionation or electrophoresis results,\n     including HbS%, HbF%, HbA%, HbA2%, and HbC% as measured by HPLC or\n     capillary electrophoresis."
    },
    {
      "code": "iron-overload-assessment",
      "display": "Iron Overload Assessment",
      "definition": "Observation category for measurements used to assess transfusional iron\n     overload in SCD patients on chronic transfusion therapy, including serum\n     ferritin, liver iron concentration (LIC), and transferrin saturation."
    },
    {
      "code": "transfusion-medicine",
      "display": "Transfusion Medicine",
      "definition": "Observation category for immunohematology and transfusion medicine\n     results, including ABO/Rh typing, extended red cell antigen phenotyping,\n     antibody identification, and crossmatch results."
    },
    {
      "code": "scd-pain-assessment",
      "display": "SCD Pain Assessment",
      "definition": "Observation category for pain severity assessments in the context of\n     Sickle Cell Disease, including numeric rating scale (NRS) scores for\n     vaso-occlusive crisis monitoring."
    },
    {
      "code": "scd-disease-monitoring",
      "display": "SCD Disease Monitoring",
      "definition": "Observation category for disease-specific monitoring observations in\n     SCD that do not fit other standard categories, including functional\n     asplenia markers, organ function screening, and complication surveillance."
    }
  ]
}