FHIR IG analytics| Package | hl7.eu.fhir.protect-child |
| Resource Type | ImplementationGuide |
| Id | ImplementationGuide-hl7.eu.fhir.protect-child.json |
| FHIR Version | R4 |
| Source | https://build.fhir.org/ig/hl7-eu/protect-child/index.html |
| URL | https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/ImplementationGuide/hl7.eu.fhir.protect-child |
| Version | 0.1.0-ci-build |
| Status | draft |
| Date | 2026-06-05T19:23:32+00:00 |
| Name | ProtectChildIG |
| Title | PROTECT-CHILD Pediatric Transplant Data Implementation Guide |
| Realm | eu |
| Authority | hl7 |
| Description | FHIR Implementation Guide for the PROTECT-CHILD project, defining a common pediatric transplant data model (recipient, donor, transplant events, follow-up, labs, microbiology, biospecimens, omics and outcomes) for use in local data space capsules and federated analytics. |
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Generated Narrative: ImplementationGuide hl7.eu.fhir.protect-child
The official URL for this implementation guide is:
https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/ImplementationGuide/hl7.eu.fhir.protect-child
FHIR Implementation Guide for the PROTECT-CHILD project, defining a common pediatric transplant data model (recipient, donor, transplant events, follow-up, labs, microbiology, biospecimens, omics and outcomes) for use in local data space capsules and federated analytics.
FHIR
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"name": "Clinical Event",
"description": "A clinical event for a transplant patient, aligned with the DMv1.2 clinical_event table. Event phase (START/END) is represented via native Condition lifecycle. Boolean DM fields are in Condition.evidence.code (presence = true). Free-text fields are in Condition.note. Dialysis episodes, retransplantation, and transplant-list entry are linked ClinicalEventProcedure resources via Procedure.reasonReference.",
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"name": "Clinical Event Flag Observation",
"description": "Boolean flag associated with a clinical event (DMv1.2 clinical_event table). Each instance represents one true flag. Absence of an instance for a given code means the flag is false. Linked to the parent ClinicalEvent via Observation.focus. The transplant type extension enables organ-specific invariants pc-flag-1 through pc-flag-3.",
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"name": "Clinical Event Procedure",
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"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/clinical-event-type-cs"
},
"name": "Clinical Event Type CodeSystem",
"description": "Types of clinical events in the PROTECT-CHILD study (DMv1.2), replacing outcome_type and post_event_type.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/clinical-event-type-vs"
},
"name": "Clinical Event Type ValueSet",
"description": "Allowed clinical event types in the PROTECT-CHILD study (DMv1.2).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/clinical-variable"
},
"name": "Clinical Variable",
"description": "Clinical variables recorded for a transplant patient at a visit, aligned with the DMv1.2 clinical_variable table. Captures weight, height, diuresis, and concomitant disease(s). Vital signs (BP, HR, O2, temperature) moved to the VitalSign profile in DMv1.2.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/clinical-variable-component-cs"
},
"name": "Clinical Variable Component Codes",
"description": "Local codes for ClinicalVariable Observation component slices that are not covered by LOINC. Currently used for the concomitant_disease repeating component.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-clinical-event-lm"
},
"name": "ClinicalEvent logical model",
"description": "Logical model for the PROTECT-CHILD clinical_event table. Each visit record captures either the start or end of a clinical event.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-clinical-event-type-lm"
},
"name": "ClinicalEventType logical model",
"description": "Logical model for the PROTECT-CHILD clinical_event_type table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-clinical-variable-lm"
},
"name": "ClinicalVariable logical model",
"description": "Logical model for the PROTECT-CHILD clinical_variable table. Includes weight, height, diuresis, and concomitant disease.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/concomitant-disease-category"
},
"name": "Concomitant Disease Category CodeSystem",
"description": "Concomitant disease codes used in the DMv1.2 clinical_variable table. Coded values are carried as ClinicalVariable Observation components (component[concomitant_disease]).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/concomitant-disease-category-vs"
},
"name": "Concomitant Disease Category ValueSet",
"description": "Allowed concomitant disease codes in clinical_variable (DMv1.2).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/concomitant-medication"
},
"name": "Concomitant Medication",
"description": "Concomitant medication record for a transplant patient at a visit, aligned with the DMv1.2 concomitant_medication table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-concomitant-medication-lm"
},
"name": "ConcomitantMedication logical model",
"description": "Logical model for the PROTECT-CHILD concomitant_medication table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/dialysis-type-vs"
},
"name": "Dialysis method ValueSet",
"description": "Dialysis method values using LOINC answer codes.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/donor-liver-type-observation"
},
"name": "Donor liver graft type observation",
"description": "Type of liver graft (complete vs partial) captured as an Observation (LOINC 74836-8). Only applicable for liver or combined transplants — invariant pc-donor-1 enforces this when tx_type extension is present.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/donor-liver-type-cs"
},
"name": "Donor Liver Type CodeSystem",
"description": "Type of liver donation (complete vs partial).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/donor-liver-type-vs"
},
"name": "Donor Liver Type ValueSet",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-donor-lm"
},
"name": "Donor logical model",
"description": "Logical model for the PROTECT-CHILD donor table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/donor-pre-ktx-dialysis-type-observation"
},
"name": "Donor pre-KTX dialysis type observation",
"description": "Dialysis method prior to kidney transplantation (LOINC 70958-4). Only applicable for kidney or combined transplants — invariant pc-donor-2 enforces this when tx_type extension is present.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/dsa-class-cs"
},
"name": "DSA HLA Class CodeSystem",
"description": "Post-transplant donor-specific antibody HLA class.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/dsa-class-vs"
},
"name": "DSA HLA Class ValueSet",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Specimen"
}
],
"reference": {
"reference": "Specimen/biosample-example-1"
},
"name": "Example Biological Sample",
"description": "Example biological sample aligned with DMv1.2. genomic_sample=true, epigenomic_sample=false.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/biosample"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Procedure"
}
],
"reference": {
"reference": "Procedure/ClinicalEventDialysisProcedureExample1"
},
"name": "Example Clinical Event Procedure — Hemodialysis",
"description": "Hemodialysis episode linked to a clinical event via reasonReference.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/clinical-event-procedure"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Procedure"
}
],
"reference": {
"reference": "Procedure/ClinicalEventRetransplantationExample1"
},
"name": "Example Clinical Event Procedure — Retransplantation",
"description": "Retransplantation event linked to the graft-failure clinical event. retransplantation=true is implicit from the existence of this resource.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/clinical-event-procedure"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Procedure"
}
],
"reference": {
"reference": "Procedure/ClinicalEventTransplantListingExample1"
},
"name": "Example Clinical Event Procedure — Transplant List Entry",
"description": "Date patient was listed for retransplantation, linked to the triggering clinical event.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/clinical-event-procedure"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Condition"
}
],
"reference": {
"reference": "Condition/ClinicalEventExample1"
},
"name": "Example Clinical Event — Kidney Rejection START",
"description": "Example clinical event recording the start of a kidney rejection episode at a 3-month visit.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/clinical-event"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ClinicalVariableExample1"
},
"name": "Example Clinical Variable",
"description": "Example clinical variables for a transplant patient at a 1-month follow-up visit (DMv1.2).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/clinical-variable"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "MedicationStatement"
}
],
"reference": {
"reference": "MedicationStatement/ConcomitantMedicationExample1"
},
"name": "Example Concomitant Medication",
"description": "Example ongoing concomitant antihypertensive medication (DMv1.2).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/concomitant-medication"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ExampleDonorAgeObservation1"
},
"name": "Example donor age observation",
"description": "Age at donation for the transplant donor (PatientDemographicsObservation; subject = Reference(Donor)).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-demographics-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ExampleDonorLiverType1"
},
"name": "Example donor liver graft type",
"description": "Complete liver graft from a deceased donor.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/donor-liver-type-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ExampleDonorDialysisType1"
},
"name": "Example donor pre-KTX dialysis type",
"description": "Hemodialysis prior to kidney transplant.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/donor-pre-ktx-dialysis-type-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ServiceRequest"
}
],
"reference": {
"reference": "ServiceRequest/BioSampleGenomicRequest1"
},
"name": "Example genomic analysis request",
"description": "ServiceRequest representing genomic_sample = true for BioSampleExample1.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/biosample-analysis-request"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ImmPatPKObservationExample1"
},
"name": "Example ImmPat PK Observation — Pre-dose level",
"description": "Tacrolimus trough level (C0) linked to the maintenance ImmPat record via partOf.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/imm-pat-pk-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ImmunologicalDataExample1"
},
"name": "Example Immunological Data",
"description": "Example immunological data panel for a liver transplant recipient at 1-month visit.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/immunological-data"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Medication"
}
],
"reference": {
"reference": "Medication/ImmunosuppressantExample1"
},
"name": "Example Immunosuppressant",
"description": "Methylprednisolone as an immunosuppressant catalogue entry.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/immunosuppressant"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "MedicationStatement"
}
],
"reference": {
"reference": "MedicationStatement/ImmPatInductionExample1"
},
"name": "Example Immunosuppressant to Patient — Induction",
"description": "Example induction immunosuppressant record (methylprednisolone) at time of transplant.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/imm-pat"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "MedicationStatement"
}
],
"reference": {
"reference": "MedicationStatement/ImmPatMaintenanceExample1"
},
"name": "Example Immunosuppressant to Patient — Maintenance",
"description": "Example maintenance immunosuppressant record (tacrolimus) at 1-month visit. PK monitoring values are separate ImmPatPKObservation resources linked via Observation.partOf.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/imm-pat"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ObservationDefinition"
}
],
"reference": {
"reference": "ObservationDefinition/InstrumentalInvestigationExample1"
},
"name": "Example Instrumental Investigation",
"description": "Example instrumental investigation catalogue entry — Liver doppler ultrasound.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/instrumental-investigation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/lab-result-observation-example-1"
},
"name": "Example Lab Result Observation",
"description": "Example creatinine result for a transplant recipient.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/lab-result-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ObservationDefinition"
}
],
"reference": {
"reference": "ObservationDefinition/LabTestExample1"
},
"name": "Example Lab Test",
"description": "Example lab test catalogue entry — Albumin, reported in g/dL.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/lab-test"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "DiagnosticReport"
}
],
"reference": {
"reference": "DiagnosticReport/lab-report-example-1"
},
"name": "Example Laboratory Report",
"description": "Example lab report grouping a single creatinine result.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/lab-report"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/microbiology-example-1"
},
"name": "Example Microbiology record",
"description": "Example microbiology panel for a liver transplant recipient.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/microbiology"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ExamplePatientAgeObservation1"
},
"name": "Example patient age observation",
"description": "Age at transplant for the recipient (PatientDemographicsObservation).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-demographics-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/PatientInstrumentalInvestigationExample1"
},
"name": "Example Patient Instrumental Investigation",
"description": "Example liver doppler ultrasound result for a transplant recipient.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-instrumental-investigation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Condition"
}
],
"reference": {
"reference": "Condition/ExamplePatientLiverDiagnosis1"
},
"name": "Example patient liver disease diagnosis",
"description": "Primary liver disease diagnosis leading to transplantation.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-liver-disease-diagnosis"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/ExamplePatientImmunologyObservation1"
},
"name": "Example patient pre-transplant immunology observation",
"description": "PRA and histological diagnosis date for the recipient (PatientImmunologyObservation).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-immunology-observation"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Condition"
}
],
"reference": {
"reference": "Condition/ExamplePatientRenalDiagnosis1"
},
"name": "Example patient renal disease diagnosis",
"description": "Primary renal disease diagnosis leading to transplantation.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-renal-disease-diagnosis"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "MedicationStatement"
}
],
"reference": {
"reference": "MedicationStatement/PreMedicationExample1"
},
"name": "Example Pre-medication",
"description": "Example record of pre-transplant medications for a liver transplant recipient.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/pre-medication"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Procedure"
}
],
"reference": {
"reference": "Procedure/TransplantExample1"
},
"name": "Example transplant",
"description": "Example transplant instance mapped from the DMv1.2 transplant table.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/transplant"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/TransplantDetailsExample1"
},
"name": "Example Transplant Details",
"description": "Example transplant details panel for a liver transplant (DMv1.2).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/transplant-details"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Patient"
}
],
"reference": {
"reference": "Patient/ExampleDonor1"
},
"name": "Example transplant donor",
"description": "Example Patient instance conforming to Donor.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/donor"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Patient"
}
],
"reference": {
"reference": "Patient/ExamplePatientTransplant1"
},
"name": "Example transplant recipient",
"description": "Example Patient instance conforming to DMv1.2 PatientTransplant.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/patient-transplant"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Encounter"
}
],
"reference": {
"reference": "Encounter/VisitExample1"
},
"name": "Example visit",
"description": "Example visit. Clinical resources (ClinicalVariable, Microbiology, PreMedication, etc.) carry the back-reference to this Visit via their own .encounter / .context element or extension.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/visit"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Observation"
}
],
"reference": {
"reference": "Observation/VitalSignExample1"
},
"name": "Example Vital Sign",
"description": "Example vital signs panel for a transplant recipient at 1-month visit.",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/vital-sign"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-imm-pat-lm"
},
"name": "ImmPat logical model",
"description": "Logical model for the PROTECT-CHILD imm_pat table. Phase field (Induction / Maintenance) maps to MedicationStatement.category.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/immunological-data"
},
"name": "Immunological Data",
"description": "Immunological data panel for a transplant patient at a given visit, aligned with the DMv1.2 immunological_data table. Covers ABO/Rh blood typing, HLA allele typing (IMGT/HLA notation), DSA, Banff category, C4d, ANCA, and related fields.\n\nConformance: Systems producing this resource SHALL populate identifier, status, category, code, subject, encounter, and at least one component. Systems consuming this resource SHALL be able to process all defined components.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/imm-data-component-cs"
},
"name": "Immunological Data Component Codes",
"description": "Local component codes for immunological data panel slices. HLA allele positions use per-position codes (hla-a-1, hla-a-2, …) so that pattern-discriminator slicing can distinguish allele 1 from allele 2. Non-HLA codes cover DSA, Banff, C4d, ANCA, and related fields.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-immunological-data-lm"
},
"name": "Immunological Data logical model",
"description": "Logical model for the PROTECT-CHILD immunological_data table. Covers blood group, Rh, HLA allele typing, DSA, Banff category, C4d, and ANCA.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/immunological-data-panel-cs"
},
"name": "Immunological Data Panel CodeSystem",
"description": "Local code for the PROTECT-CHILD composite immunological data panel, which covers ABO/Rh typing, HLA allele typing, DSA, Banff category, C4d, and ANCA.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/immunosuppressant"
},
"name": "Immunosuppressant",
"description": "Immunosuppressive drug catalogue entry. imm_id is carried as an identifier; the drug name maps to Medication.code.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/imm-pat-dose-unit-vs"
},
"name": "Immunosuppressant Dose Unit ValueSet",
"description": "Allowed UCUM dose units for immunosuppressant therapy records (DMv1.2 imm_pat.unit field).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/immunosuppressant-drug-type-vs"
},
"name": "Immunosuppressant Drug Type",
"description": "ValueSet of immunosuppressive drug types.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/immunosuppressant-drug-type-cs"
},
"name": "Immunosuppressant Drug Type",
"description": "Types of immunosuppressive drugs used in the transplant setting.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-immunosuppressant-lm"
},
"name": "Immunosuppressant logical model",
"description": "Logical model for the PROTECT-CHILD immunosuppressant catalogue table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/imm-pat-phase-cs"
},
"name": "Immunosuppressant Phase CodeSystem",
"description": "Whether the immunosuppressant record is for induction or maintenance phase (DMv1.2). Used as MedicationStatement.category codes.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/imm-pat-phase-vs"
},
"name": "Immunosuppressant Phase ValueSet",
"description": "Allowed phase values for MedicationStatement.category on ImmPat records.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/imm-pat-pk-observation"
},
"name": "Immunosuppressant PK Observation",
"description": "Pharmacokinetic monitoring result (pre-dose trough level, 2 h post-dose level / C2, or AUC) for an immunosuppressant therapy record. Linked to the parent ImmPat MedicationStatement via Observation.partOf. Use Observation.subject to carry the patient directly for FHIR searchability.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/imm-pat-pk-type-cs"
},
"name": "Immunosuppressant PK Observation Type CodeSystem",
"description": "Types of pharmacokinetic monitoring observations for immunosuppressant therapy (DMv1.2 pre_dose_level, csa_2h_post_dose_level, auc).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/imm-pat-pk-type-vs"
},
"name": "Immunosuppressant PK Observation Type ValueSet",
"description": "Allowed PK observation types for ImmPatPKObservation.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/imm-pat"
},
"name": "Immunosuppressant to Patient",
"description": "Immunosuppressive treatment record for a transplant patient (induction or maintenance), aligned with the DMv1.2 imm_pat table. Covers both induction and maintenance phases via MedicationStatement.category. Patient is navigable via context (Visit) → Visit.subject. Pharmacokinetic monitoring values (pre_dose_level, csa_2h_post_dose_level, auc) are represented as linked ImmPatPKObservation resources via Observation.partOf.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/instrumental-investigation"
},
"name": "Instrumental Investigation",
"description": "Catalogue entry for an instrumental investigation test type, aligned with the instrumental_investigation table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/instrumental-investigation-name-vs"
},
"name": "Instrumental Investigation Name",
"description": "ValueSet of instrumental investigation tests conducted.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/instrumental-investigation-name-cs"
},
"name": "Instrumental Investigation Name",
"description": "Types of instrumental investigation tests conducted (expanded for DMv1.2).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-instrumental-investigation-lm"
},
"name": "InstrumentalInvestigation logical model",
"description": "Logical model for the PROTECT-CHILD instrumental_investigation table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/intraoperative-complication-cs"
},
"name": "Intraoperative Complications CodeSystem",
"description": "Intraoperative complications during transplantation (liver or kidney).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/intraoperative-complication-vs"
},
"name": "Intraoperative Complications ValueSet",
"description": "Allowed intraoperative complications during transplantation.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/lab-result-observation"
},
"name": "Lab Result",
"description": "Individual laboratory result for a transplant recipient, aligned with the lab_result table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/lab-result-unit-vs"
},
"name": "Lab Result Unit ValueSet",
"description": "Allowed UCUM units of measurement for lab result values (DMv1.2 unit field).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/lab-test"
},
"name": "Lab Test",
"description": "Definition of a laboratory test (catalogue entry), aligned with the lab_test table. Systems SHALL use LOINC codes from LabTestNameVS as the primary code. Local codes from LabTestLocalCS SHALL only be used for calculated values without a single unambiguous LOINC code.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/lab-test-local-cs"
},
"name": "Lab Test Local Codes",
"description": "Local codes for laboratory tests that do not have a single unambiguous LOINC code in the PROTECT-CHILD context (e.g., calculated values or composite measures).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/lab-test-name-vs"
},
"name": "Lab Test Name ValueSet",
"description": "Allowed laboratory test names for the PROTECT-CHILD data model. LOINC codes are used as the primary standard; local codes from LabTestLocalCS are used only for calculated or composite measures without a single unambiguous LOINC equivalent.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/lab-report"
},
"name": "Laboratory DiagnosticReport",
"description": "Laboratory report grouping one or more lab result observations for a transplant recipient.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-lab-result-lm"
},
"name": "LabResult logical model",
"description": "Logical model for the PROTECT-CHILD lab_result table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-lab-test-lm"
},
"name": "LabTest logical model",
"description": "Logical model for the PROTECT-CHILD lab_test catalogue table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/mfi-category-cs"
},
"name": "MFI Category CodeSystem",
"description": "Mean fluorescence intensity category for DSA.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/mfi-category-vs"
},
"name": "MFI Category ValueSet",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/microbiology"
},
"name": "Microbiology",
"description": "Microbiology panel for transplant recipients and/or donors. Component slices cover virology (EBV, CMV, Parvovirus B19, HSV, Adenovirus, VZV, BKV) plus organ-specific findings. The transplant type (extension[tx-type]) is required when organ-specific components are populated; invariants pc-micro-1 through pc-micro-4 enforce applicability.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/microbiology-cs"
},
"name": "Microbiology component codes",
"description": "Local codes for microbiology panel Observation components.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-microbiology-lm"
},
"name": "Microbiology logical model",
"description": "Logical model for the PROTECT-CHILD microbiology table. Covers viral serology, DNA quantification, culture results, and BKVAN evidence.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/patient-demographics-observation"
},
"name": "Patient Demographics Observation",
"description": "Panel Observation for patient or donor age at transplant (age_years, age_months). Category is #survey to distinguish from laboratory results. One instance per patient or donor. Subject accepts PatientTransplant or Donor.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/patient-instrumental-investigation"
},
"name": "Patient Instrumental Investigation",
"description": "Instrumental investigation performed on a transplant patient, aligned with the pat_inst_inv table. All DM fields map to native Observation elements — no extensions.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/patient-instrumental-investigation-result-cs"
},
"name": "Patient Instrumental Investigation Result CodeSystem",
"description": "Result of the instrumental investigation test conducted (Normal / Abnormal).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/patient-instrumental-investigation-result-vs"
},
"name": "Patient Instrumental Investigation Result ValueSet",
"description": "Allowed results for the instrumental investigation test (Normal, Abnormal).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/patient-liver-disease-diagnosis"
},
"name": "Patient Liver Disease Diagnosis",
"description": "Primary liver disease diagnosis that led to transplantation, aligned with DMv1.2 diag_primary_disease and date_diag_primary_disease. date_diag_primary_disease maps to Condition.onsetDateTime.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-patient-lm"
},
"name": "Patient logical model",
"description": "Logical model for the PROTECT-CHILD patient table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/patient-observations-panel-cs"
},
"name": "Patient Observations Panel CodeSystem",
"description": "Local codes for PROTECT-CHILD patient observation panels.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/patient-immunology-observation"
},
"name": "Patient Pre-transplant Immunology Observation",
"description": "Panel Observation for pre-transplant immunological scalar facts: maximum PRA, most recent PRA, and histological diagnosis date. Category is #laboratory. One instance per transplant recipient. ABO/Rh and HLA typing are in ImmunologicalData.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/patient-renal-disease-diagnosis"
},
"name": "Patient Renal Disease Diagnosis",
"description": "Primary renal disease diagnosis that led to transplantation, aligned with DMv1.2 diag_primary_disease and date_diag_primary_disease. date_diag_primary_disease maps to Condition.onsetDateTime.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/patient-pra-type-cs"
},
"name": "PRA Type CodeSystem",
"description": "Distinguishes maximum (historical) vs most recent PRA measurements. Used as component codes in PatientImmunologyObservation.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/patient-pra-type-vs"
},
"name": "PRA Type ValueSet",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/pre-medication-antihypertensive-drug-cs"
},
"name": "Pre-medication Antihypertensive Drug CodeSystem",
"description": "Antihypertensive drugs used as pre-transplant medication.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/pre-medication-antihypertensive-drug-vs"
},
"name": "Pre-medication Antihypertensive Drug ValueSet",
"description": "Allowed antihypertensive drugs for antihypertensive_treatment.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/pre-medication"
},
"name": "Pre-transplant Medication",
"description": "Pre-transplant medication record aligned with the pre_medication table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/pre-medication-child"
},
"name": "Pre-transplant Medication — Child Record",
"description": "A subsidiary pre-transplant medication record (rituximab desensitisation or antiviral prophylaxis) linked to its parent PreMedication via MedicationStatement.partOf. status #completed = given; status #not-taken = explicitly not given.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-pre-medication-lm"
},
"name": "PreMedication logical model",
"description": "Logical model for the PROTECT-CHILD pre_medication table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Organization"
}
],
"reference": {
"reference": "Organization/PCCenter1LaPaz"
},
"name": "PROTECT-CHILD Centre 1 — La Paz",
"description": "La Paz University Hospital, Madrid, Spain (center_no = 1).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/study-centre"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Organization"
}
],
"reference": {
"reference": "Organization/PCCenter2Padova"
},
"name": "PROTECT-CHILD Centre 2 — Padova",
"description": "University of Padova, Italy (center_no = 2).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/study-centre"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Organization"
}
],
"reference": {
"reference": "Organization/PCCenter3Palma"
},
"name": "PROTECT-CHILD Centre 3 — Palma",
"description": "Son Espases University Hospital, Palma, Spain (center_no = 3).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/study-centre"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "Organization"
}
],
"reference": {
"reference": "Organization/PCCenter4Hamburg"
},
"name": "PROTECT-CHILD Centre 4 — Hamburg",
"description": "University Medical Centre Hamburg-Eppendorf, Germany (center_no = 4).",
"exampleCanonical": "https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/study-centre"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/patient-rh-factor-cs"
},
"name": "Rh Factor CodeSystem",
"description": "Rh factor for transplant recipients and donors.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/patient-rh-factor-vs"
},
"name": "Rh Factor ValueSet",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/study-centre"
},
"name": "Study Centre",
"description": "A PROTECT-CHILD participating transplant centre. center_no (1–4) is carried as identifier.value in the study-centre namespace. All PatientTransplant resources reference their centre via Patient.managingOrganization.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "NamingSystem"
}
],
"reference": {
"reference": "NamingSystem/NsStudyCentreId"
},
"name": "Study centre identifier namespace",
"description": "Namespace for PROTECT-CHILD study centre identifiers (center_no = 1–4).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/transplant"
},
"name": "Transplant",
"description": "Procedure profile representing a transplant, aligned with DMv1.2 transplant table. The donor is linked via extension[donor_id]. The associated Visit is linked natively via Procedure.encounter. Intraoperative details are represented as a single TransplantDetails panel Observation linked via Observation.partOf.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/transplant-detail-cs"
},
"name": "Transplant Detail CodeSystem",
"description": "Codes for transplant-level details captured as Observation components.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/transplant-detail-vs"
},
"name": "Transplant Detail ValueSet",
"description": "Allowed codes for transplant detail Observation components.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/transplant-details"
},
"name": "Transplant Details",
"description": "Intraoperative and peri-operative details panel for a transplant, aligned with the DMv1.2 transplant table. All detail fields are components of a single Observation linked to the Transplant Procedure via Observation.partOf. One instance per transplant. The mandatory txType component carries the transplant type (liver / kidney / combined) so organ-specific invariants (pc-td-1 through pc-td-5) can be evaluated without cross-resource resolution.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/donor"
},
"name": "Transplant Donor",
"description": "Transplant donor profile based on the FHIR Patient resource, aligned with the donor table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:extension"
}
],
"reference": {
"reference": "StructureDefinition/transplant-donor-ref"
},
"name": "Transplant donor reference",
"description": "Reference to the donor associated with this transplant.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-transplant-lm"
},
"name": "Transplant logical model",
"description": "Logical model for the PROTECT-CHILD transplant table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/patient-transplant"
},
"name": "Transplant Recipient",
"description": "Transplant recipient profile based on the FHIR Patient resource, aligned with the DMv1.2 patient table. Blood group, Rh, and HLA data are in ImmunologicalData. Age at transplant is in PatientDemographicsObservation; PRA and histological date are in PatientImmunologyObservation. Patient.birthDate SHOULD also be populated when known. Primary disease diagnoses are PatientLiverDiseaseDiagnosis / PatientRenalDiseaseDiagnosis (Condition).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/transplant-type-cs"
},
"name": "Transplant Type CodeSystem",
"description": "Type of solid-organ transplant (liver, kidney, combined liver-kidney).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:extension"
}
],
"reference": {
"reference": "StructureDefinition/transplant-type-ext"
},
"name": "Transplant type context",
"description": "Records the transplant type (liver / kidney / combined) on resources that carry organ-specific data fields, enabling organ-specific FHIRPath invariants within a single resource.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/transplant-type-vs"
},
"name": "Transplant Type ValueSet",
"description": "Allowed transplant types.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/biliary-anastomosis-type-cs"
},
"name": "Type of surgical biliary anastomosis CodeSystem",
"description": "Types of biliary anastomosis used in liver transplantation.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/biliary-anastomosis-type-vs"
},
"name": "Type of surgical biliary anastomosis ValueSet",
"description": "Allowed types of biliary anastomosis in liver transplant.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/ureteral-anastomosis-type-cs"
},
"name": "Ureteral Graft Anastomosis Type CodeSystem",
"description": "Types of ureteral graft anastomosis used in transplantation (DMv1.2).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/ureteral-anastomosis-type-vs"
},
"name": "Ureteral Graft Anastomosis Type ValueSet",
"description": "Allowed ureteral graft anastomosis types.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/vascular-complication-type-cs"
},
"name": "Vascular Complication Type CodeSystem",
"description": "Types of vascular complications in transplant (DMv1.2).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/vascular-complication-type-vs"
},
"name": "Vascular Complication Type ValueSet",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/visit"
},
"name": "Visit",
"description": "Encounter profile representing a visit in the transplant follow-up schedule. All clinical resources back-reference this Visit via their native encounter/context element or a slim extension on the resource itself. No extensions are needed on Visit.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-visit-lm"
},
"name": "Visit logical model",
"description": "Logical model for the PROTECT-CHILD visit table.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:extension"
}
],
"reference": {
"reference": "StructureDefinition/biosample-visit-ref"
},
"name": "Visit reference",
"description": "visit_id – reference to the Visit during which this sample was collected.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/visit-type-cs"
},
"name": "Visit Type CodeSystem",
"description": "Type of visit in the transplant follow-up schedule.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "ValueSet"
}
],
"reference": {
"reference": "ValueSet/visit-type-vs"
},
"name": "Visit Type ValueSet",
"description": "Allowed types of visits in the transplant follow-up schedule (DMv1.2).",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:resource"
}
],
"reference": {
"reference": "StructureDefinition/vital-sign"
},
"name": "Vital Sign",
"description": "Vital signs panel for a transplant patient at a visit, aligned with the DMv1.2 vital_sign table. Captures standard vitals plus ABPM (24-hour ambulatory blood pressure) metrics.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "CodeSystem"
}
],
"reference": {
"reference": "CodeSystem/vital-sign-local-cs"
},
"name": "Vital Sign Local Codes",
"description": "Local codes for ABPM-derived metrics that have no published LOINC code: systolic/diastolic blood pressure load and nocturnal dip percentages.",
"exampleBoolean": false
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information",
"valueString": "StructureDefinition:logical"
}
],
"reference": {
"reference": "StructureDefinition/pc-vital-sign-lm"
},
"name": "Vital Sign logical model",
"description": "Logical model for the PROTECT-CHILD vital_sign table. Contains standard vitals and ABPM measurements.",
"exampleBoolean": false
}
],
"page": {
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "toc.html"
}
],
"nameUrl": "toc.html",
"title": "Table of Contents",
"generation": "html",
"page": [
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "index.html"
}
],
"nameUrl": "index.html",
"title": "Home",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "logical-models.html"
}
],
"nameUrl": "logical-models.html",
"title": "Logical Models",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "data-model-erd.html"
}
],
"nameUrl": "data-model-erd.html",
"title": "Data Model (ERD)",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "mapping.html"
}
],
"nameUrl": "mapping.html",
"title": "Model Maps",
"generation": "markdown",
"page": [
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "patient-map.html"
}
],
"nameUrl": "patient-map.html",
"title": "Patient",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "donor-map.html"
}
],
"nameUrl": "donor-map.html",
"title": "Donor",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "visit-map.html"
}
],
"nameUrl": "visit-map.html",
"title": "Visit",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "transplant-map.html"
}
],
"nameUrl": "transplant-map.html",
"title": "Transplant",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "immunological-data-map.html"
}
],
"nameUrl": "immunological-data-map.html",
"title": "Immunological Data",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "vital-sign-map.html"
}
],
"nameUrl": "vital-sign-map.html",
"title": "Vital Sign",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "biosample-map.html"
}
],
"nameUrl": "biosample-map.html",
"title": "BioSample",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "pre-medication-map.html"
}
],
"nameUrl": "pre-medication-map.html",
"title": "Pre-Medication",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "clinical-variable-map.html"
}
],
"nameUrl": "clinical-variable-map.html",
"title": "Clinical Variable",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "concomitant-medication-map.html"
}
],
"nameUrl": "concomitant-medication-map.html",
"title": "Concomitant Medication",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "microbiology-map.html"
}
],
"nameUrl": "microbiology-map.html",
"title": "Microbiology",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "instrumental-investigation-map.html"
}
],
"nameUrl": "instrumental-investigation-map.html",
"title": "Instrumental Investigation",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "immunosuppressant-map.html"
}
],
"nameUrl": "immunosuppressant-map.html",
"title": "Immunosuppressant",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "lab-map.html"
}
],
"nameUrl": "lab-map.html",
"title": "Laboratory",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "clinical-event-type-map.html"
}
],
"nameUrl": "clinical-event-type-map.html",
"title": "Clinical Event Type",
"generation": "markdown"
},
{
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/ig-page-name",
"valueUrl": "clinical-event-map.html"
}
],
"nameUrl": "clinical-event-map.html",
"title": "Clinical Event",
"generation": "markdown"
}
]
}
]
},
"parameter": [
{
"code": "path-resource",
"value": "input/capabilities"
},
{
"code": "path-resource",
"value": "input/examples"
},
{
"code": "path-resource",
"value": "input/extensions"
},
{
"code": "path-resource",
"value": "input/models"
},
{
"code": "path-resource",
"value": "input/operations"
},
{
"code": "path-resource",
"value": "input/profiles"
},
{
"code": "path-resource",
"value": "input/resources"
},
{
"code": "path-resource",
"value": "input/vocabulary"
},
{
"code": "path-resource",
"value": "input/maps"
},
{
"code": "path-resource",
"value": "input/testing"
},
{
"code": "path-resource",
"value": "input/history"
},
{
"code": "path-resource",
"value": "fsh-generated/resources"
},
{
"code": "path-pages",
"value": "template/config"
},
{
"code": "path-pages",
"value": "input/images"
},
{
"code": "path-tx-cache",
"value": "input-cache/txcache"
}
]
}
}