FHIR IG Statistics: StructureDefinition/PatientFollowUp
Resources that use this resource
Resources that this resource uses
Narrative
Note: links and images are rebased to the (stated) source
Source
{
"resourceType": "StructureDefinition",
"id": "PatientFollowUp",
"text": {
"status": "extensions",
"div": "<!-- snip (see above) -->"
},
"url": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp",
"version": "0.1.0",
"name": "PatientFollowUpI4rc",
"title": "Patient Follow Up",
"status": "draft",
"date": "2025-07-21T15:34:12+00:00",
"publisher": "IDEA4RC Project",
"contact": [
{
"name": "IDEA4RC Project",
"telecom": [
{
"system": "url",
"value": "https://www.idea4rc.eu/"
}
]
},
{
"name": "IDEA4RC Project",
"telecom": [
{
"system": "url",
"value": "https://www.idea4rc.eu/"
}
]
}
],
"description": "Patient Follow Up\nMaturity Level: 0 Draft",
"jurisdiction": [
{
"coding": [
{
"system": "http://unstats.un.org/unsd/methods/m49/m49.htm",
"code": "150",
"display": "Europe"
}
]
}
],
"fhirVersion": "4.0.1",
"kind": "logical",
"abstract": false,
"type": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp",
"baseDefinition": "http://hl7.org/fhir/StructureDefinition/Base",
"derivation": "specialization",
"snapshot": {
"extension": [
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-base-version",
"valueString": "4.0.1"
}
],
"element": [
{
"id": "PatientFollowUp",
"path": "PatientFollowUp",
"short": "Patient Follow Up",
"definition": "Patient Follow Up\nMaturity Level: 0 Draft",
"min": 0,
"max": "*",
"base": {
"path": "Base",
"min": 0,
"max": "*"
},
"isModifier": false
},
{
"id": "PatientFollowUp.patient",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.patient",
"short": "Patient (M)",
"definition": "Patient element",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.patient",
"min": 1,
"max": "*"
},
"type": [
{
"code": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/Subject"
}
]
},
{
"id": "PatientFollowUp.statusOfPatientAtLastFollowUp",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.statusOfPatientAtLastFollowUp",
"short": "Status of patient at last follow-up (M)",
"definition": "Describes the status at last follow-up \nIf DOD, DOC or DUC register the death in the DEATH table (with date of last contact as death date). If the death cause is specified use the cause_concept_id.\nIf lost to follow up register an observation.\nAll the other information can be derived from the other data.\n\nMaybe it should be moved to Patient entity",
"comment": "Alive, No Evidence of Disease (NED) - 2000100071\n Dead of Disease (DOD) - 2000100072\nDead of Other Cause (DOC) - 2000100073\nDead of Unknown Cause (DUC) - 2000100074\nAlive With Disease (AWD) - 2000100075\nLost to follow-up - 4163894",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.statusOfPatientAtLastFollowUp",
"min": 1,
"max": "*"
},
"type": [
{
"code": "CodeableConcept"
}
]
},
{
"id": "PatientFollowUp.statusOfDiseaseAtLastFollowUp",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.statusOfDiseaseAtLastFollowUp",
"short": "Status of disease at last follow-up (M) type EpisodeEvent",
"definition": "Describes the disease status at the last follow-up. This value is redundant as it could be derived from the disease status in EpisodeEvent. If a Patient has 3 follow-ups, but the disease status (e.g., stable disease) did not change during those, the follow-ups will be grouped into a single one with the last date of the three of them.",
"comment": "Complete Remission - 32946\nPartial Remission - 32947\nStable Disease - 32948\nProgression - 32949\nRecurrence - 2000100002\nrecurrence is algorithmically derived from previous episode (if it was complete remission)",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.statusOfDiseaseAtLastFollowUp",
"min": 1,
"max": "*"
},
"type": [
{
"code": "BackboneElement"
}
]
},
{
"id": "PatientFollowUp.patientFollowUpDate",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.patientFollowUpDate",
"short": "Patient Follow Up date (M)",
"definition": "Date of the clinical follow-up",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.patientFollowUpDate",
"min": 1,
"max": "*"
},
"type": [
{
"code": "date"
}
]
},
{
"id": "PatientFollowUp.newCancerDiagnosis",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.newCancerDiagnosis",
"short": "New cancer diagnosis (M)",
"definition": "identifies whether the patient has developed a subsequent primary cancer \nCheck",
"comment": "Yes - 4188539\nNo - 4188540",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.newCancerDiagnosis",
"min": 1,
"max": "*"
},
"type": [
{
"code": "boolean"
}
]
},
{
"id": "PatientFollowUp.dateOfNewCancerDiagnosis",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.dateOfNewCancerDiagnosis",
"short": "Date of new cancer diagnosis (M)",
"definition": "date of subsequent primary cancer diagnosis",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.dateOfNewCancerDiagnosis",
"min": 1,
"max": "*"
},
"type": [
{
"code": "date"
}
]
},
{
"id": "PatientFollowUp.newCancerTopography",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.newCancerTopography",
"short": "New cancer topography (M)",
"definition": "clarifies the site of the subsequent primary cancer (from a predefined list of sites)",
"comment": "Any value of Class ICDO Condition",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.newCancerTopography",
"min": 1,
"max": "*"
},
"type": [
{
"code": "CodeableConcept"
}
]
},
{
"id": "PatientFollowUp.lastContact",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
},
{
"url": "http://hl7.org/fhir/tools/StructureDefinition/snapshot-source",
"valueUri": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/PatientFollowUp|0.1.0"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.lastContact",
"short": "Last Contact (M)",
"definition": "Date of the last contact with the patient, of any kind.",
"min": 1,
"max": "*",
"base": {
"path": "PatientFollowUp.lastContact",
"min": 1,
"max": "*"
},
"type": [
{
"code": "date"
}
]
}
]
},
"differential": {
"element": [
{
"id": "PatientFollowUp",
"path": "PatientFollowUp",
"short": "Patient Follow Up",
"definition": "Patient Follow Up\nMaturity Level: 0 Draft"
},
{
"id": "PatientFollowUp.patient",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.patient",
"short": "Patient (M)",
"definition": "Patient element ",
"min": 1,
"max": "*",
"type": [
{
"code": "http://hl7.eu/fhir/ig/idea4rc/StructureDefinition/Subject"
}
]
},
{
"id": "PatientFollowUp.statusOfPatientAtLastFollowUp",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.statusOfPatientAtLastFollowUp",
"short": "Status of patient at last follow-up (M)",
"definition": "Describes the status at last follow-up \nIf DOD, DOC or DUC register the death in the DEATH table (with date of last contact as death date). If the death cause is specified use the cause_concept_id.\nIf lost to follow up register an observation.\nAll the other information can be derived from the other data.\n\nMaybe it should be moved to Patient entity",
"comment": "Alive, No Evidence of Disease (NED) - 2000100071\n Dead of Disease (DOD) - 2000100072\nDead of Other Cause (DOC) - 2000100073\nDead of Unknown Cause (DUC) - 2000100074\nAlive With Disease (AWD) - 2000100075\nLost to follow-up - 4163894",
"min": 1,
"max": "*",
"type": [
{
"code": "CodeableConcept"
}
]
},
{
"id": "PatientFollowUp.statusOfDiseaseAtLastFollowUp",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.statusOfDiseaseAtLastFollowUp",
"short": "Status of disease at last follow-up (M) type EpisodeEvent",
"definition": "Describes the disease status at the last follow-up. This value is redundant as it could be derived from the disease status in EpisodeEvent. If a Patient has 3 follow-ups, but the disease status (e.g., stable disease) did not change during those, the follow-ups will be grouped into a single one with the last date of the three of them. ",
"comment": "Complete Remission - 32946\nPartial Remission - 32947\nStable Disease - 32948\nProgression - 32949\nRecurrence - 2000100002\nrecurrence is algorithmically derived from previous episode (if it was complete remission)",
"min": 1,
"max": "*",
"type": [
{
"code": "BackboneElement"
}
]
},
{
"id": "PatientFollowUp.patientFollowUpDate",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
},
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.patientFollowUpDate",
"short": "Patient Follow Up date (M)",
"definition": "Date of the clinical follow-up ",
"min": 1,
"max": "*",
"type": [
{
"code": "date"
}
]
},
{
"id": "PatientFollowUp.newCancerDiagnosis",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.newCancerDiagnosis",
"short": "New cancer diagnosis (M)",
"definition": "identifies whether the patient has developed a subsequent primary cancer \nCheck",
"comment": "Yes - 4188539\nNo - 4188540",
"min": 1,
"max": "*",
"type": [
{
"code": "boolean"
}
]
},
{
"id": "PatientFollowUp.dateOfNewCancerDiagnosis",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.dateOfNewCancerDiagnosis",
"short": "Date of new cancer diagnosis (M)",
"definition": "date of subsequent primary cancer diagnosis ",
"min": 1,
"max": "*",
"type": [
{
"code": "date"
}
]
},
{
"id": "PatientFollowUp.newCancerTopography",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-headneck-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.newCancerTopography",
"short": "New cancer topography (M)",
"definition": "clarifies the site of the subsequent primary cancer (from a predefined list of sites) ",
"comment": "Any value of Class ICDO Condition",
"min": 1,
"max": "*",
"type": [
{
"code": "CodeableConcept"
}
]
},
{
"id": "PatientFollowUp.lastContact",
"extension": [
{
"extension": [
{
"url": "code",
"valueCode": "SHALL:handle"
},
{
"url": "actor",
"valueCanonical": "http://hl7.eu/fhir/ig/idea4rc/actor-sarcoma-i4rc"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/obligation"
}
],
"path": "PatientFollowUp.lastContact",
"short": "Last Contact (M)",
"definition": "Date of the last contact with the patient, of any kind. ",
"min": 1,
"max": "*",
"type": [
{
"code": "date"
}
]
}
]
}
}
FHIR
