FHIR IG Statistics: StructureDefinition/nfdi4health-ex-mds-record-linkage

Resources that use this resource

Resources that this resource uses

No resources found

Examples of Use for Extension

No extension usage examples found

Narrative

No narrative content found in resource

Source

{
  "resourceType": "StructureDefinition",
  "id": "nfdi4health-ex-mds-record-linkage",
  "url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-record-linkage",
  "version": "1.0.0",
  "name": "NFDI4Health_EX_MDS_Record_Linkage",
  "title": "NFDI4Health EX MDS Record Linkage",
  "status": "draft",
  "date": "2024-12-06",
  "publisher": "NFDI4Health",
  "contact": [
    {
      "telecom": [
        {
          "system": "url",
          "value": "https://www.nfdi4health.de"
        }
      ]
    }
  ],
  "description": "Group of items providing information on record linkage. Based on NFDI4Health Record Linkage Module schema version 3.3.1.",
  "fhirVersion": "4.0.1",
  "mapping": [
    {
      "identity": "rim",
      "uri": "http://hl7.org/v3",
      "name": "RIM Mapping"
    },
    {
      "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
      "name": "NFDI4Health MDS Record Linkage (Schema 3.3.1) to FHIR Mapping"
    }
  ],
  "kind": "complex-type",
  "abstract": false,
  "context": [
    {
      "type": "element",
      "expression": "ResearchStudy"
    },
    {
      "type": "element",
      "expression": "Library"
    }
  ],
  "type": "Extension",
  "baseDefinition": "http://hl7.org/fhir/StructureDefinition/Extension",
  "derivation": "constraint",
  "differential": {
    "element": [
      {
        "id": "Extension",
        "path": "Extension",
        "short": "Information about record linkage for the [RESOURCE]",
        "definition": "Group of items providing information on record linkage. (Source: MDS v3.3.1)",
        "comment": "Applies only if Design.dataSharingPlan.recordLinkage has been answered with Yes/True (as per source XML condition for the RecordLinkage group).",
        "max": "1",
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RL1 RecordLinkage"
          }
        ]
      },
      {
        "id": "Extension.extension:legalBasis",
        "path": "Extension.extension",
        "sliceName": "legalBasis",
        "short": "Legal regulation/permission for record linkage",
        "definition": "Indication whether there are specific regulations/permissions for record linkage.",
        "comment": "Additional Information: Whether any specific legal regulations/permissions exist (e.g. for social data, for cancer registry data, hospital data, etc.). (Source: XML RecordLinkage.legalBasis)",
        "min": 0,
        "max": "1"
      },
      {
        "id": "Extension.extension:legalBasis.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:legalBasis.url",
        "path": "Extension.extension.url",
        "fixedUri": "legalBasis"
      },
      {
        "id": "Extension.extension:legalBasis.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "boolean"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.legalBasis (XML nfdhtfcov19-dataelement-123)"
          }
        ]
      },
      {
        "id": "Extension.extension:legalBasisDetails",
        "path": "Extension.extension",
        "sliceName": "legalBasisDetails",
        "short": "Specific legal basis allowing record linkage",
        "definition": "Information specifying which specific legal basis allows for record linkage.",
        "comment": "Additional Information: If existing, any specific legal regulations/permissions (e.g. for social data, for cancer registry data, hospital data, etc.). Cardinality in source XML: 1..1 if RecordLinkage.legalBasis is 'True'/'Yes'; otherwise 0..0. (Source: XML RecordLinkage.legalBasisDetails)",
        "min": 0,
        "max": "1"
      },
      {
        "id": "Extension.extension:legalBasisDetails.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:legalBasisDetails.url",
        "path": "Extension.extension.url",
        "fixedUri": "legalBasisDetails"
      },
      {
        "id": "Extension.extension:legalBasisDetails.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "string"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.legalBasisDetails (XML nfdhtfcov19-dataelement-125)"
          }
        ]
      },
      {
        "id": "Extension.extension:informedConsent",
        "path": "Extension.extension",
        "sliceName": "informedConsent",
        "short": "Informed consent for record linkage obtained?",
        "definition": "Indication whether an informed consent that allows record linkage has been obtained.",
        "min": 0,
        "max": "1"
      },
      {
        "id": "Extension.extension:informedConsent.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:informedConsent.url",
        "path": "Extension.extension.url",
        "fixedUri": "informedConsent"
      },
      {
        "id": "Extension.extension:informedConsent.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "boolean"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.informedConsent (XML nfdhtfcov19-dataelement-126)"
          }
        ]
      },
      {
        "id": "Extension.extension:responsibleInstitutions",
        "path": "Extension.extension",
        "sliceName": "responsibleInstitutions",
        "short": "Responsible authorities",
        "definition": "Institutions and authorities that must agree to the record linkage.",
        "min": 0,
        "max": "*"
      },
      {
        "id": "Extension.extension:responsibleInstitutions.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:responsibleInstitutions.url",
        "path": "Extension.extension.url",
        "fixedUri": "responsibleInstitutions"
      },
      {
        "id": "Extension.extension:responsibleInstitutions.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "string"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.responsibleInstitutions (XML nfdhtfcov19-dataelement-127)"
          }
        ]
      },
      {
        "id": "Extension.extension:additionalCosts",
        "path": "Extension.extension",
        "sliceName": "additionalCosts",
        "short": "Additional costs for record linkage",
        "definition": "Indication whether there are additional costs for record linkage.",
        "min": 0,
        "max": "1"
      },
      {
        "id": "Extension.extension:additionalCosts.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:additionalCosts.url",
        "path": "Extension.extension.url",
        "fixedUri": "additionalCosts"
      },
      {
        "id": "Extension.extension:additionalCosts.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "boolean"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.additionalCosts (XML nfdhtfcov19-dataelement-128)"
          }
        ]
      },
      {
        "id": "Extension.extension:identifiers",
        "path": "Extension.extension",
        "sliceName": "identifiers",
        "min": 0,
        "max": "*"
      },
      {
        "id": "Extension.extension:identifiers.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:identifiers.url",
        "path": "Extension.extension.url",
        "fixedUri": "identifiers"
      },
      {
        "id": "Extension.extension:identifiers.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "Identifier"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.identifiers (XML nfdhtfcov19-dataelement-129)"
          }
        ]
      },
      {
        "id": "Extension.extension:identifiers.value[x].value",
        "path": "Extension.extension.value[x].value",
        "short": "Identifiers for record linkage",
        "definition": "Identifiers that can be used for record linkage (e.g. names, date of birth, zip code, insurance number or control number as in cancer registries)."
      },
      {
        "id": "Extension.extension:furtherDetails",
        "path": "Extension.extension",
        "sliceName": "furtherDetails",
        "short": "Further details important for conducting record linkage",
        "definition": "Additional important details for conducting record linkage.",
        "min": 0,
        "max": "1"
      },
      {
        "id": "Extension.extension:furtherDetails.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:furtherDetails.url",
        "path": "Extension.extension.url",
        "fixedUri": "furtherDetails"
      },
      {
        "id": "Extension.extension:furtherDetails.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "string"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.furtherDetails (XML nfdhtfcov19-dataelement-130)"
          }
        ]
      },
      {
        "id": "Extension.extension:exampleResources",
        "path": "Extension.extension",
        "sliceName": "exampleResources",
        "short": "Record linkage example resources",
        "definition": "DOIs of additional related resources specific to record linkage (e.g., publications).",
        "comment": "Short Input Help: Please do not repeat those already entered in the section 'Related resources'.",
        "min": 0,
        "max": "*"
      },
      {
        "id": "Extension.extension:exampleResources.extension",
        "path": "Extension.extension.extension",
        "max": "0"
      },
      {
        "id": "Extension.extension:exampleResources.url",
        "path": "Extension.extension.url",
        "fixedUri": "exampleResources"
      },
      {
        "id": "Extension.extension:exampleResources.value[x]",
        "path": "Extension.extension.value[x]",
        "type": [
          {
            "code": "string"
          }
        ],
        "mapping": [
          {
            "identity": "NFDI4Health-MDS-RecordLinkage-v3-3-1",
            "map": "RecordLinkage.exampleResources (XML nfdhtfcov19-dataelement-131)"
          }
        ]
      },
      {
        "id": "Extension.url",
        "path": "Extension.url",
        "fixedUri": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-record-linkage"
      },
      {
        "id": "Extension.value[x]",
        "path": "Extension.value[x]",
        "max": "0"
      }
    ]
  }
}