FHIR IG analytics| Package | de.nfdi4health.mds |
| Resource Type | Library |
| Id | Library-InstanceOfLibraryHKR.json |
| FHIR Version | R4 |
No resources found
No resources found
No narrative content found in resource
FHIR
FHIRsmith{
"resourceType": "Library",
"id": "InstanceOfLibraryHKR",
"meta": {
"profile": [
"https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-pr-mds-registry"
]
},
"status": "active",
"extension": [
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-groups-of-diseases",
"extension": [
{
"url": "generally",
"valueCoding": {
"code": "II",
"system": "http://hl7.org/fhir/sid/icd-10",
"display": "Neoplasms"
}
}
]
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-descriptions",
"extension": [
{
"url": "value",
"valueString": "Das Hamburgische Krebsregister (HKR) ist ein integriertes klinisch-epidemiologisches Krebsregister für den Wohn- und Behandlungsort Hamburg. Unser Ziel ist es, die Qualität der onkologischen Versorgung zu verbessern, indem wir eine neutrale Datengrundlage zum Krebsgeschehen bereitstellen und zur Transparenz beitragen. Das Hamburgische Krebsregister hat den landes- und bundesrechtlich definierten Auftrag, kontinuierlich und flächendeckend Angaben zu Diagnose, Therapie und Verlauf von allen in Hamburg behandelten Krebspatientinnen und -patienten zu erfassen, zu verarbeiten, für die wissenschaftliche Forschung zur Verfügung zu stellen und auszuwerten sowie die Ergebnisse zu veröffentlichen."
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-language",
"valueCodeableConcept": {
"coding": [
{
"code": "de",
"system": "http://terminology.hl7.org/CodeSystem/iso639-1",
"display": "German"
}
]
}
}
]
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-subject",
"valueCoding": {
"code": "125676002",
"system": "http://snomed.info/sct",
"display": "Person (person)"
}
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-data-sharing-plan",
"extension": [
{
"url": "generally",
"valueCoding": {
"code": "373066001",
"system": "http://snomed.info/sct",
"display": "Yes (qualifier value)"
}
},
{
"url": "description",
"valueString": "Data may be provided according to §§ 7, 8, 8a and 9 Hamburg Cancer Registry Law"
},
{
"url": "supportingInformation",
"valueCoding": {
"code": "009",
"system": "https://www.nfdi4health.de/fhir/metadataschema/CodeSystem/nfdi4health-cs-remaining-concepts",
"display": "Data dictionary"
}
},
{
"url": "timeFrame",
"valueString": "continuously"
},
{
"url": "accessCriteria",
"valueString": "Data may be provided according to §§ 7, 8, 8a and 9 Hamburg Cancer Registry Law"
},
{
"url": "url",
"valueUrl": "https://www.hamburg.de/krebsregister/10765432/publikationen-datennutzung/#anker_4"
},
{
"url": "datashield",
"valueCoding": {
"code": "373067005",
"system": "http://snomed.info/sct",
"display": "No (qualifier value)"
}
},
{
"url": "recordLinkage",
"valueBoolean": true
}
]
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-library-population",
"extension": [
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-study-population-location",
"extension": [
{
"url": "countries",
"valueCoding": {
"code": "DEU",
"system": "urn:iso:std:iso:3166"
}
},
{
"url": "coverage",
"valueCoding": {
"code": "C25643",
"system": "http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl",
"display": "Regional"
}
},
{
"url": "region",
"valueString": "1.8 million residents plus nonresident patients being treated in Hamburg"
}
]
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-study-population-description",
"valueString": "1.8 million residents plus nonresident patients being treated in Hamburg"
}
]
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-library-ethics-approval",
"valueCoding": {
"code": "C48660",
"system": "http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl",
"display": "Not Applicable"
}
},
{
"extension": [
{
"url": "general",
"valueCoding": {
"code": "028",
"system": "https://www.nfdi4health.de/fhir/metadataschema/CodeSystem/nfdi4health-cs-remaining-concepts",
"display": "Administrative databases"
}
},
{
"url": "general",
"valueCoding": {
"code": "C17649",
"system": "http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl",
"display": "Other"
}
},
{
"url": "description",
"valueString": "All hospitals, medical practices and other physician-managed oncological care facilities in Hamburg transmit information to the HCR based on their statutory reporting obligation and the uniform national data set for the following reporting occasions: diagnosis and histological confirmation, start and end of therapeutic measures as well as therapy-relevant changes in the disease status, i.e. progression events such as progression and relapse, and death."
}
],
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-data-source"
},
{
"extension": [
{
"url": "legalBasis",
"valueBoolean": false
}
],
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-record-linkage"
}
],
"type": {
"coding": [
{
"code": "asset-collection"
}
]
},
"effectivePeriod": {
"start": "1990-01-01"
},
"subjectReference": {
"reference": "Group/InstanceOfGroupEligibilityHKR"
},
"relatedArtifact": [
{
"extension": [
{
"extension": [
{
"valueIdentifier": {
"type": {
"coding": [
{
"code": "104",
"system": "https://www.nfdi4health.de/fhir/metadataschema/CodeSystem/nfdi4health-cs-remaining-concepts",
"display": "NFDI4Health"
}
]
},
"system": "https://csh.nfdi4health.de/resource/",
"value": "122"
},
"url": "identifier"
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-related-artifact-reltype-nfdi-resource",
"valueCoding": {
"code": "075",
"system": "https://www.nfdi4health.de/fhir/metadataschema/CodeSystem/nfdi4health-cs-remaining-concepts",
"display": "A is source of B"
}
}
],
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-related-artifact-nfdi"
},
{
"extension": [
{
"url": "identifier",
"valueIdentifier": {
"value": "WHO/2019-nCoV/HHtransmission/2020.4",
"type": {
"coding": [
{
"code": "C17649",
"system": "http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl",
"display": "Other"
}
]
}
}
},
{
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-related-artifact-reltype-non-nfdi-resource",
"valueCoding": {
"code": "072",
"system": "https://www.nfdi4health.de/fhir/metadataschema/CodeSystem/nfdi4health-cs-remaining-concepts",
"display": "A is identical to B"
}
}
],
"url": "https://www.nfdi4health.de/fhir/metadataschema/StructureDefinition/nfdi4health-ex-mds-related-artifact-non-nfdi"
}
],
"type": "documentation",
"url": "www.nfdi4health.de"
}
]
}