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Source1

{
  "resourceType": "ResearchSubject",
  "id": "mii-exa-seltene-registerteilnahme",
  "meta": {
    "profile": [
      "https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-pr-seltene-registerteilnahme|2027.0.0-ballot"
    ]
  },
  "text": {
    "status": "extensions",
    "div": "<!-- snip (see above) -->"
  },
  "extension": [
    {
      "url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/StructureDefinition/mii-ex-seltene-register",
      "valueReference": {
        "reference": "Library/mii-exa-seltene-register-katalog-euro-nmd"
      }
    }
  ],
  "identifier": [
    {
      "system": "https://ern-euro-nmd.eu/fhir/sid/subject",
      "value": "NMD-DE-004712"
    }
  ],
  "status": "on-study",
  "period": {
    "start": "2024-08-15"
  },
  "study": {
    "reference": "ResearchStudy/mii-exa-seltene-register-euro-nmd"
  },
  "individual": {
    "reference": "Patient/mii-exa-seltene-patient-sma-001"
  },
  "consent": {
    "reference": "Consent/mii-exa-seltene-register-einwilligung"
  }
}