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Packagede.medizininformatikinitiative.kerndatensatz.seltene
Resource TypeResearchStudy
IdResearchStudy-mii-exa-seltene-register-euro-nmd.json
FHIR VersionR4

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Narrative

Note: links and images are rebased to the (stated) source

English

Generated Narrative: ResearchStudy mii-exa-seltene-register-euro-nmd

identifier: https://ern-euro-nmd.eu/fhir/sid/registry/EURO-NMD-REG

title: ERN EURO-NMD Patient Registry

status: Active

description:

Registry of the European Reference Network for Rare Neuromuscular Diseases.

German

Generated Narrative: ResearchStudy mii-exa-seltene-register-euro-nmd

identifier: https://ern-euro-nmd.eu/fhir/sid/registry/EURO-NMD-REG

title: ERN EURO-NMD Patient Registry

status: Active

description:

Registry of the European Reference Network for Rare Neuromuscular Diseases.

Source1

{
  "resourceType": "ResearchStudy",
  "id": "mii-exa-seltene-register-euro-nmd",
  "text": {
    "status": "generated",
    "div": "<!-- snip (see above) -->"
  },
  "identifier": [
    {
      "system": "https://ern-euro-nmd.eu/fhir/sid/registry",
      "value": "EURO-NMD-REG"
    }
  ],
  "title": "ERN EURO-NMD Patient Registry",
  "status": "active",
  "description": "Registry of the European Reference Network for Rare Neuromuscular Diseases."
}