FHIR IG analytics| Package | de.medizininformatikinitiative.kerndatensatz.pros |
| Resource Type | Questionnaire |
| Id | Questionnaire-mii-qst-pro-promis-16.json |
| FHIR Version | R4 |
| Source | https://simplifier.net/resolve?scope=de.medizininformatikinitiative.kerndatensatz.pros@2027.0.0-ballot.1&canonical=https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/Questionnaire/mii-qst-pro-promis-16 |
| URL | https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/Questionnaire/mii-qst-pro-promis-16 |
| Version | 2027.0.0-ballot.1 |
| Status | draft |
| Title | MII QST PRO PROMIS-16 (Adults) |
| Realm | de |
| Description | PROMIS-16 Profile v1.0 - Ultra-short 16-item HRQoL Profile across 8 domains (Edelen et al. 2024, doi:10.1007/s11136-023-03597-6). T-score calculation per Supplement S4 is delegated to a CQL Library (see roadmap 2027). |
| Copyright | The FHIR Questionnaire resource (linkIds, extensions, score calculation logic, observation extraction definitions) is part of the MII PRO Module and is licensed under CC-BY 4.0. The PROMIS items contained herein (item text, response options, scoring algorithms, IRT parameters) are © 2008–2024 PROMIS Health Organization and PROMIS Cooperative Group. PROMIS® is a registered trademark. See https://www.healthmeasures.net for the upstream license. The official German translations are provided by PCOR-MII (Patient-Centered Outcomes Research within the Medizininformatik-Initiative) and curated by the PROMIS National Center Germany (CPCOR, Charité – Universitätsmedizin Berlin; head: Felix Fischer). Institutional use outside the PCOR-MII / MII context requires a usage request to CPCOR: https://cpcor.charite.de/promis_national_center_deutschland/nutzungsanfragen LOINC® codes are © Regenstrief Institute, Inc. and used under the LOINC license: https://loinc.org/license/ |
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FHIR
FHIRsmith{
"resourceType": "Questionnaire",
"id": "mii-qst-pro-promis-16",
"meta": {
"profile": [
"https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/StructureDefinition/mii-pr-pro-questionnaire|2027.0.0-ballot.1"
]
},
"url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/Questionnaire/mii-qst-pro-promis-16",
"title": "MII QST PRO PROMIS-16 (Adults)",
"description": "PROMIS-16 Profile v1.0 - Ultra-short 16-item HRQoL Profile across 8 domains (Edelen et al. 2024, doi:10.1007/s11136-023-03597-6). T-score calculation per Supplement S4 is delegated to a CQL Library (see roadmap 2027).",
"extension": [
{
"url": "http://hl7.org/fhir/StructureDefinition/artifact-versionAlgorithm",
"valueCoding": {
"code": "natural",
"system": "http://hl7.org/fhir/version-algorithm",
"display": "Natural"
}
},
{
"extension": [
{
"url": "displayable",
"valueBoolean": true
},
{
"url": "collectable",
"valueBoolean": true
},
{
"url": "calculatable",
"valueBoolean": false
},
{
"url": "extractable",
"valueBoolean": true
},
{
"url": "domainAligned",
"valueBoolean": true
}
],
"url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/StructureDefinition/mii-ex-pro-questionnaire-capabilities"
}
],
"useContext": [
{
"valueReference": {
"display": "PROMIS (Patient-Reported Outcomes Measurement Information System) (https://www.healthmeasures.net/explore-measurement-systems/promis)"
},
"code": {
"code": "focus",
"system": "http://terminology.hl7.org/CodeSystem/usage-context-type"
}
},
{
"valueReference": {
"display": "PROMIS National Center Deutschland (CPCOR Charité) — Curator of the official German translations provided by PCOR-MII (https://cpcor.charite.de/promis_national_center_deutschland)"
},
"code": {
"code": "focus",
"system": "http://terminology.hl7.org/CodeSystem/usage-context-type"
}
},
{
"valueReference": {
"display": "PROMIS-16 Profile (Edelen et al. 2024, Qual Life Res) (https://doi.org/10.1007/s11136-023-03597-6)"
},
"code": {
"code": "focus",
"system": "http://terminology.hl7.org/CodeSystem/usage-context-type"
}
}
],
"contact": [
{
"telecom": [
{
"system": "url",
"value": "https://cpcor.charite.de/promis_national_center_deutschland/nutzungsanfragen"
}
],
"name": "PROMIS National Center Deutschland (CPCOR)"
}
],
"code": [
{
"code": "promis-promis16",
"system": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/CodeSystem/mii-cs-pro-questionnaire-catalogue",
"display": "PROMIS-16 Profile Questionnaire (ultra-short 8-domain profile)"
}
],
"item": [
{
"item": [
{
"code": [
{
"code": "62826-3",
"system": "http://loinc.org",
"display": "Are you able to go up and down stairs at a normal pace [PROMIS]"
}
],
"linkId": "promis-pfa21",
"type": "choice",
"text": "Are you able to go up and down stairs at a normal pace?",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Können Sie mit normaler Geschwindigkeit Treppen hoch- und runtergehen?"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-physical-function-response-scale"
},
{
"code": [
{
"code": "62827-1",
"system": "http://loinc.org",
"display": "Are you able to go for a walk of at least 15 minutes [PROMIS]"
}
],
"linkId": "promis-pfa23",
"type": "choice",
"text": "Are you able to go for a walk of at least 15 minutes?",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Können Sie mindestens 15 Minuten lang spazieren gehen?"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-physical-function-response-scale"
}
],
"linkId": "PROMIS-16.PhysicalFunction",
"type": "group",
"text": "Physical Function",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Körperliche Funktion"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"code": [
{
"code": "61941-1",
"system": "http://loinc.org",
"display": "I found it hard to focus on anything other than my anxiety in past 7 days"
}
],
"linkId": "promis-edanx40",
"type": "choice",
"text": "I found it hard to focus on anything other than my anxiety.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich fand es schwer, auf etwas anderes zu achten als auf meine Angst."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
},
{
"code": [
{
"code": "61942-9",
"system": "http://loinc.org",
"display": "My worries overwhelmed me in past 7 days"
}
],
"linkId": "promis-edanx41",
"type": "choice",
"text": "My worries overwhelmed me.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Meine Sorgen haben mich überwältigt."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
}
],
"linkId": "PROMIS-16.Anxiety",
"type": "group",
"text": "Emotional Distress — Anxiety",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Emotionale Belastung — Angst"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"code": [
{
"code": "61967-6",
"system": "http://loinc.org",
"display": "I felt depressed in past 7 days [PROMIS]"
}
],
"linkId": "promis-eddep29",
"type": "choice",
"text": "I felt depressed.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich fühlte mich niedergeschlagen."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
},
{
"code": [
{
"code": "61973-4",
"system": "http://loinc.org",
"display": "I felt hopeless in past 7 days [PROMIS]"
}
],
"linkId": "promis-eddep41",
"type": "choice",
"text": "I felt hopeless.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich fühlte mich hoffnungslos."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
}
],
"linkId": "PROMIS-16.Depression",
"type": "group",
"text": "Emotional Distress — Depression",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Emotionale Belastung — Depressivität"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"code": [
{
"code": "61878-5",
"system": "http://loinc.org",
"display": "I feel fatigued during the past 7 days [PROMIS]"
}
],
"linkId": "promis-hi7",
"type": "choice",
"text": "I feel fatigued.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich bin erschöpft."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
},
{
"code": [
{
"code": "61882-7",
"system": "http://loinc.org",
"display": "I had trouble starting things because I was tired in past 7 days [PROMIS]"
}
],
"linkId": "promis-an3",
"type": "choice",
"text": "I had trouble starting things because I was tired.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Es fällt mir schwer, etwas anzufangen, weil ich müde bin."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
}
],
"linkId": "PROMIS-16.Fatigue",
"type": "group",
"text": "Fatigue",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Erschöpfung"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"linkId": "promis-sleep25",
"type": "choice",
"text": "I had problems during the day because of poor sleep.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich hatte tagsüber Probleme, weil ich schlecht geschlafen habe."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
},
{
"linkId": "promis-sleep90",
"type": "choice",
"text": "I had trouble sleeping.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Es fiel mir schwer zu schlafen."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
}
],
"linkId": "PROMIS-16.Sleep",
"type": "group",
"text": "Sleep-related Impairment / Sleep Disturbance",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Schlafbezogene Beeinträchtigungen / Schlafbeeinträchtigung"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"linkId": "promis-srpper31-caps",
"type": "choice",
"text": "I have trouble taking care of my regular personal responsibilities.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Es fällt mir schwer, mich um meine regelmäßigen persönlichen Verpflichtungen zu kümmern."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
},
{
"code": [
{
"code": "76712-9",
"system": "http://loinc.org",
"display": "I have trouble doing all of the activities with friends that I want to do [PROMIS]"
}
],
"linkId": "promis-srpper46-caps",
"type": "choice",
"text": "I have trouble doing all of the activities with friends that I want to do.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Es fällt mir schwer, allen Aktivitäten nachzugehen, die ich mit Freunden machen möchte."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-frequency-response-scale"
}
],
"linkId": "PROMIS-16.SocialRoles",
"type": "group",
"text": "Ability to Participate in Social Roles and Activities",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Teilhabe an sozialen Rollen und Aktivitäten"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"code": [
{
"code": "61758-9",
"system": "http://loinc.org",
"display": "How much did pain interfere with your day to day activities in past 7 days [PROMIS]"
}
],
"linkId": "promis-painin9",
"type": "choice",
"text": "How much did pain interfere with your day-to-day activities?",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Wie sehr beeinträchtigen Schmerzen Ihre Alltagsaktivitäten?"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
},
{
"code": [
{
"code": "61773-8",
"system": "http://loinc.org",
"display": "How much did pain interfere with your ability to participate in social activities in past 7 days [PROMIS]"
}
],
"linkId": "promis-painin31",
"type": "choice",
"text": "How much did pain interfere with your ability to participate in social activities?",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Wie sehr beeinträchtigen Schmerzen Ihre Fähigkeit, an sozialen Aktivitäten teilzunehmen?"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
}
],
"linkId": "PROMIS-16.PainInterference",
"type": "group",
"text": "Pain Interference",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Beeinträchtigung durch Schmerzen"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
},
{
"item": [
{
"linkId": "promis-pc27r",
"type": "choice",
"text": "I have been able to remember to do things, like take medicine or buy something I needed.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich bin fähig gewesen, mich an Dinge zu erinnern, die ich tun musste, wie z.B. Medikamente einnehmen oder etwas kaufen, das ich benötigte."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
},
{
"linkId": "promis-pc-caps3r",
"type": "choice",
"text": "I have been able to think clearly without extra effort.",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Ich bin fähig gewesen, klar zu denken, ohne mich extra anzustrengen."
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
},
"required": true,
"answerValueSet": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/ValueSet/mii-vs-pro-promis-intensity-response-scale"
}
],
"linkId": "PROMIS-16.Cognition",
"type": "group",
"text": "Cognitive Function — Abilities",
"_text": {
"extension": [
{
"extension": [
{
"url": "lang",
"valueCode": "de"
},
{
"url": "content",
"valueString": "Kognitive Funktionen — Fähigkeiten"
}
],
"url": "http://hl7.org/fhir/StructureDefinition/translation"
}
]
}
}
],
"version": "2027.0.0-ballot.1",
"publisher": "Medizininformatik-Initiative (MII) – PRO Modul",
"copyright": "The FHIR Questionnaire resource (linkIds, extensions, score calculation logic, observation extraction definitions) is part of the MII PRO Module and is licensed under CC-BY 4.0.\n\nThe PROMIS items contained herein (item text, response options, scoring algorithms, IRT parameters) are © 2008–2024 PROMIS Health Organization and PROMIS Cooperative Group. PROMIS® is a registered trademark. See https://www.healthmeasures.net for the upstream license.\n\nThe official German translations are provided by PCOR-MII (Patient-Centered Outcomes Research within the Medizininformatik-Initiative) and curated by the PROMIS National Center Germany (CPCOR, Charité – Universitätsmedizin Berlin; head: Felix Fischer).\n\nInstitutional use outside the PCOR-MII / MII context requires a usage request to CPCOR: https://cpcor.charite.de/promis_national_center_deutschland/nutzungsanfragen\n\nLOINC® codes are © Regenstrief Institute, Inc. and used under the LOINC license: https://loinc.org/license/",
"status": "draft",
"experimental": true,
"language": "en"
}